Category Archives: Bike Ride

Time: Then and Now

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I recently teased my friend’s daughter, almost outraging her, about freezing time so that she can’t grow older than 14 years. She is reaching for everything that comes after this year. High school. Summer jobs. Learner’s permit. Driver’s license. Voting. Graduation. And everything beyond that.

This young lady is the same age that my youngest child Jessie would be, if she’d continued to grow up.

Isn’t it provocative, to consider what you’d do if you could slow, stop or reverse time? It’s certainly been the subject of many stirring and playful plots by authors and screenwriters over the centuries. It could be a thriller or a life lesson, depending on whether you’re Steven Spielberg, Frank Capra, Audrey Niffenegger or H.G. Wells.

Time. Stopping it. Letting it flow.

At some points in life, we’re in such a rush. We want what comes next. Just like 14-year-olds. As children or teens, we’re looking ahead. Counting down. Or counting up, depending on your point of view. Striving toward the goal of being a grownup. Yearning for what seems so enticing.

Yet ask almost any recent high school grad. Wouldn’t they sometimes prefer to relinquish the pressures and responsibilities piling up on top of them, and just be a kid again? With only a child’s concerns? They’re staring adulthood in the face, feeling it shifting their frame of reference, altering their sense of the value of free time and work time, play and respite, labor and effort, privacy and intimacy and friendship and social liberty versus  commitments to college, jobs, loans, housing, relationships and many other binding connections.

A recent graduate might actually wish to stop the hands on the clock. Or spin them backward, to return to what seemed like simpler times.

If you look backward or forward with too much idealism, it’s basically a “grass is always greener” viewpoint. Every moment, past or future, is layered and complex and special and compromised.

In other instances, we’re wise enough or foolish enough, or at just the right cognitive developmental stage (babies, for instance) to loll around in the moment. Bask in it. Splash in it. Submerge ourselves inside it. Be present, here and now.

So recently, I was tugged into my own past during a lively reminiscence with this same 14-year-old girl about our favorite Disney television comedies. Hannah Montana, to be specific.

I found out, much to my shock, that the television series continued beyond the years I’d watched it. Why was I surprised? But I was. I’d missed some seasons, because we don’t have expanded cable access at home. And I don’t have a reason to watch it anymore.

So where did I originally watch this Disney series? When I spent endless hours at Childrens Hospital with Jessie. That was a surreal slice of life, living inside a climate-controlled atmosphere, unable to feel the touch of wind or sun most of time, shut inside an environment with its own rhythms and traditions and language, unlike anywhere else in the world: time lifted out of any other reality, stretching out from hours and days into months and years.

We spent time meaningfully. We conducted plenty of school work and tutoring, reading and writing. Creative projects with fabric and glue and paper and paints and clay and scissors and every sort of craft material you can imagine. Imaginative therapy with music and play and art and talking and role-playing.

But we also spent recreational time playing competitive video games, board games, reading books or watching hours of movie and television, when Jessie felt especially yucky.

Do I miss living in the hospital? No. Do I wish I could snuggle up next to Jessie in bed, watching her favorite Disney shows … yes.

Though the reality of Jessie’s mortality was always palpable, we couldn’t imagine a time we wouldn’t be able to feel her curl up close, still fitting into our laps at age 9, thin and graceful, long and prickly, moody and sweet. It’s impossible to imagine that you won’t be able to touch, protect, play, argue with and console your child. It’s impossible to imagine the emptiness where arms once encircle, or a weight that won’t press against you any more, or a breath, or a voice, or a giggle, or a brush of her fingers.

We’ll say good-bye again again, in a healthy, natural way when Sarah goes to college in the fall.

But a child’s passing? His or her permanent departure? You can’t imagine that will eventually feel like.

Yet the shadow of it  made us pay attention to the time we had with her, and each other, in the moment. In a sense, it focused us. Acted as a lens, and changed how we viewed and measure time. We tried not to take any of it for granted.

Afterward, time changes again. You must grow familiar with her absence hour by hour, day by day, month by month, year by year. Now we measure time, in part, by what came before. And after. For instance, as my conversation with a 14-year-old revealed, there are  years punctuated by High School Musical and Hannah Montana. And years without.

Some children will achieve those milestones that my friend’s 14-year-old yearns to reach. Others will never get there.

Yesterday during the PMC, I watched the results of time’s progression: its blessings and its losses. Survivors posed for a “Living Proof” photo, and many of them were once toddlers or elementary school students on treatment for cancer. Now they’re teens and young adults riding to support cancer research. Like Sarah, many members of those families grow up to study medicine of some kind. I also sought out and hugged sweaty panting adults riding in memory of their children. Others, whom I don’t know, rode for siblings, spouses, or parents.

Then there’s Hannah Montana-time. I realize that some parents don’t approve of the Disney channel. Or Hannah Montana. Mostly on principle. It represents some frothy, silly values that don’t gibe with feminism, for instance. It’s sort of like letting little kids play with Barbies. It demeans, in a way, a more intellectual and wholesome value system. There’s merit, of course, to that position.

Yet it doesn’t make me feel guilty or apologetic for enjoying Hannah Montana with Jessie.  I have written before about the importance of letting children feel like princesses. Role-playing. Therapeutic play. Externalizing experiences and developing scripts and games and roles around it. The potency of magical thinking and the power of fantasy, dreaming and escaping. (Aside: Hannah Montana was a big hit for little girls of Jessie’s age, in part because they could imagine themselves living a double life as “regular kid” and a “superstar.” The possibility of being either ordinary or fairy-tale … or both at once. And in Jessie’s case, perhaps her wishfulness extended to being healthy, as well as all tossing around all those long blonde tresses and rocking those great wigs and outfits.)

So yes, I appreciate the value of my Hannah Montana-years. But I don’t think I’d turn back time. Nor would I fast-forward it.

Here? Right now? A whole lot of life is happening in our family. Sarah’s last month at home before college. My final few weeks before graduate school. The start of a new season and transformation in our family’s life.

The same is true in most families, for a variety of reasons. Summer versus autumn. Vacation and camps versus school, sports, extracurriculars and work. We’re all in the height of this time of year, but it will come to a close soon enough. We’ll all be in the middle of transitions, and the stress that comes with them.

For now, I’ll just savor right where I am. Sure, maybe I’ll sneak in a new episode of Hannah Montana, in honor of Jessie and childhood and the silly ways we escape difficult realities, and the magic of both childhood and a rich adult fantasy life. (Trust me, hours upon hours of Disney channel didn’t steal Jessie’s ability to use her imagination … or mine.) But mostly I’ll try not to tune out; I’ll pay attention to the experience of my living daughter Sarah, who is letting go of childhood and grabbing onto adulthood, even as I write this journal.

Spin

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Here is the other theme song I wrote a fear years ago for our cyclists. Sarah has performed this at the Coast of Hope bike ride a few times.

Our first family PMC, with Jessie as a young pedal partner, pictured with the team riding in her honor.

Again, the song has wider meaning than just one event. To me, it represents any ride or journey, including the one that Chris and Sarah will continue when they ride together tomorrow in the Pan Mass Challenge / PMC. (I’m posting more images from several years of the PMC, so you can see just how young Jessie and Sarah were when all of this activity began, and how mature Sarah is now, as an adult rider celebrating this tradition with her dad. You’ve already seen images from 2010 and 2011 in the past few days.)

None of us can imagine, from start to finish, just where we’ll go along life’s pathways. And most of all, what determines the finish line? There are so many milestones we pass, so many balloon arches underneath which we ride, so many bridges we cross, so many lines we draw and then step over, so many gateways through which we move … we don’t always know what’s around the corner or beyond the next crossing. You may cross one demarcation, but in many ways, the ultimate destination is always just ahead.

Enjoy the ride, enjoy the journey, as much as you can. It’s the passage from one way station to the next, the route from one stopping point to the other, that comprises our life together.

Here’s the song.

Spin
by Gail Doktor © 2009

Hearts cry out as wheels start turnin’
One more ride and one more day
Dare ask questions along this journey
Hope for answers along the way

Sure I’ve been lost and I’ve been broken
Look for hope after living through hell
Had to stop and start all over
Still carry scars from times I fell

      Oh you can’t measure life in speed and distance
      Or starting points and finish lines
      It’s where we go and who rides with us
      Every moment, every mile

What comes next? No way of knowing
Each arrival includes farewell
In our coming is our going
…in between we spin the wheel.

      Oh you can’t measure life in speed and distance
      Or starting points and finish lines
      It’s where we go and who rides with us
      Every moment, every mile

Find the beat
      Moving you onward
Breathe the song
      Of our going
Hear the drumming
      Of our heartbeats
Risk the turning
      Of the wheel

      Oh, you can’t measure life in speed and distance,
      Or starting points and finish lines
      It’s where we go and who rides with us
      Every heartbeat, every hope found
      Every moment, every mile

Chris and Sarah hold up the Bright Happy Power banner during a rainy 2011 PMC.

Jessie and Sarah waiting at family stop in Dighton for our PMC riders.

Our 2009 PMC team (in Wellesley, MA … more riders left from Bourne, MA).

Why We Ride

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Something short, for a change, I promise.

Below are the lyrics to a song that I wrote for the Coast of Hope bike ride, but they apply equally to the Pan Mass Challenge bike ride this weekend.  Chris and Sarah will ride as a father-daughter team for the fourth year. We welcome your support for their ride, but also know that many of you actively support other causes that are close to your heart.

Let this song speak to you. It is written for any ride, any journey, regardless of the cause or inspiration. As soon as possible, I’ll share the recorded version with music and vocals by a local high school band called Gnarly Charlie. It’s inspired by the many cyclists in my life, past and present, and there are lots!

WHY WE RIDE
by Gail Doktor © 2012

We ride to feel the rush
And the stirring of the wind
We ride on paths unknown
And roads where we have been

We ride through wild silence
In rugged highs and lows
We ride in dappled sunlight
And where the seawind blows

     Oh, we ride for those who can’t
     We ride because we can
     Yes (oh), we ride because we believe
     We ride for one more chance

We ride to push each other
Past distance, youth and years
We ride to push ourselves
Beyond all doubt and fears

We ride in celebration
We ride beyond our loss
We ride to honor others
Or to help a greater cause

     Oh, we ride for those who can’t
     We ride because we can
     Yes (oh), we ride because we believe
     We ride for one more chance

We ride to find a way
To get up when we fall
We ride to finish first
Or to cross the line at all

We ride at softest daybreak
We ride til touch of night
We ride in search of hope
We ride to catch the light

     Oh, we ride for those who can’t
     We ride because we can
     Yes (oh), we ride because we believe
     We ride for one more chance

Jessie and Sarah on bikes, before cancer.

Jessie and Sarah on bikes after cancer.

Inspired by Real People (Defintely Not Saints)

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Chris and Sarah in 2011 PMC.

Bandwagon. Soapbox. Call it what you will, sometimes I journal about things that make me passionate. Issues that prompt me to want to act, to find a way to help and make a difference.

We all have causes. I know this and I honor the responses we have each made to the  challenges that have touched our lives. You have yours. I have mine. We can’t do everything, but we can choose to care and support those efforts that move us. We can donate time, talent or treasure to the causes that speak to us.

Right now you’re reading (again) about one of mine. Today I’m inspired by my family (Chris, Sarah, and Jessie) and other cyclists.

In just my town of Ipswich, 11 athletes will participate in the Pan Mass Challenge (PMC) bike ride this weekend. In total, over 5,500 cyclists will participate. They’ll start from Wellesley and Bourne in Massachusetts. Many will end in Provincetown, although there are several routes; they’ll ride between 25-110 miles over one day and 153-190 miles over two days. They come from 36 states and eight countries. There’s approximately one volunteer working to support every two riders.  The youngest riders are 13 and the eldest is 88.

The PMC is the single largest athletic fundraising event in the nation. Last year, about 230,000 individual contributions were made to support these cyclists. This year’s goal? Raise $36 million for the Dana Farber’s Jimmy Fund. This event also provides almost two-thirds of Dana Farber’s annual revenue to support groundbreaking cancer research; 100% of tax-deductible contributions go toward this effort.

As I’ve mentioned before, the research at Dana Farber is revolutionary. There are a handful of institutions around the world (most of them private and supported by fundraising initiatives such as this one) that pioneer most of the cancer knowledge base and treatment protocols used in the world today. Dana Farber is one of these leaders, and their research and treatment methods set the gold-standard of practice used in clinics and hospitals around the globe.

Their teams and their knowledge sustained our daughter and sister Jessie for six years while she lived with leukemia (the best-of-the-best kind of leukemia, if you have to get it, as we were once told). Statistically, Jessie had all the best chances to go through the traditional, effective 2-year protocol and come out a survivor. These days, about 87% of all children treated for this type of leukemia will be long-term survivors. (Even 30 years ago, that number was much lower, so Dana Farber has made tremendous improvements in survival rates.)

Yet almost from the start, Jessie was one of the kids on the rare side of the experience; she was constantly beset with infectious challenges. She almost died on day 10 after diagnosis, over a span of eight hours, as her body shut down, not from cancer alone, but from the infection that had set in. Her oncology team saved her then, by identifying the bacterial cause and treating her aggressively with the best pairing of antibiotics to stop its progression. She endured numerous complications from that interlude, had parts of her body surgically removed and altered as a result, but she lived. There were many more bouts of infections, not all of them so dangerous.

When she relapsed the first time, and we couldn’t identify a close genetic match for a donor for a bone marrow transplant (another statistical surprise for all of us), Dana Farber used an alternative protocol, much more aggressive, that lasted another two years. After she relapsed a second time, Dana Farber recommended another option for transplant; we used stem cells donated anonymously by parents from their newborn’s umbilical cord. The transplant itself was successful; Jessie’s body populated with the new healthy cells of her donor … her blood type and cellular footprint changed. Sadly, aggressive infectious complications combined with a much-compromised immune system ultimately challenged her body too much, and she died 101 days after transplant. Six years after being diagnosed with leukemia.

Age nine.

These bare paragraphs don’t begin to articulate the depth of our family’s journey. They’re just an outline of an illness, and don’t tell you about  Jessie herself. All her passions: theater, swimming, dance, karate, bike-riding, dog-care, kindergarten-first-second-and-third grade, books, card games, soccer, drawing, conversations, friends, and family. She practiced how to ride a two-wheeler, but still used training wheels. She earned an orange belt in karate. She began to read on her own just weeks before she died. She had a crush on a boy in her grade. She dressed in black biker boots and red sparkly Oz shoes. She wore flowing princess gowns, bald or not. She went on father-daughter dates with dad. With her sister Sarah, she ran the Rotary 5K Kids Course. She put up mom’s hair in crazy do’s. She earned a soccer team medal. For one birthday, she raised money and supplies for the local animal shelter. In school, she led an act of social justice in the cafeteria to prevent ostracizing of another child. She performed in a community theatrical production while on treatment. She also traveled to England while on treatment. She savored Zumi’s chai tea, black olives, sushi, spaghetti with “sprinkle cheese” and sauce on the side, chicken and lo mein noodles, pancakes with syrup, and mint-chocolate chip ice cream. She went to the top of a ski slope, rode on skimobiles and jetskis (go fast). She also had temper tantrums, threw things, swore, yelled, drew in permanent marker on furniture, hid with the dog when we looked for her, liked to win even if it required inventing new rules for the game, preferred to be the boss in most situations, preferred the limelight and the liberty of choreographing her own dances or writing her own songs, without practicing enough to know the basic steps or musical chords, teased her sister relentlessly, and sometimes “hated us.”

Let me be clear. She was a little girl, compromised by a mortal illness, but living life as boldly as possible, despite that challenge. She wasn’t a saint, an angel or a martyr. She was “just Jessie,” but that means a whole lot, if you knew her.

Most of what Jessie accomplished, she did while on treatment. Two-thirds of her life was lived on treatment. Her lifespan was meaningful and vibrant, in great part because Dana Farber’s teams found ways to keep the cancer in abeyance and also to balance out quality of life with effective treatment. Nothing stopped her. And she changed hundreds, possibly thousands, of lives, simply by “living large” despite leukemia.

Anything I say cannot fully describe our family over those years. We have changed markedly from the family who first started this journey almost eleven years ago.

Sarah grew up from a naive second-grader into a middle-schooler who’d seen almost every difficult side of human existence, even before lost her sister. She stopped being the little girl who imagined she was a horse or a puppy and grew into a soccer player, on-again/off-again theatrical participant, saxophonist, committed dancer (modern, jazz/hip-hop, ballet), Honors student and gifted singer (solo and chorus). She helped to shape our family’s foundation, Bright Happy Power, and its work at Childrens Hospital with young cancer patients. She volunteered for InterAct (high school Rotary service club) and loved the mission trips with First Church’s youth group; that’s how she connected hands-on with spirituality. She is determined to help teens in abusive dating relationships or living with other traumas. And about becoming a pediatric oncology nurse. Her life grew more, not less, complex after living through Jessie’s cancer experience.

Chris? Became a partner in his architecture firm during the years of Jessie’s original diagnosis. During the most demanding parts of Jessie’s treatment, he was Sarah’s primary caregiver (took her to school every day, and was home every night to give her dinner, do homework and  put her to bed), yet also managed to visit the hospital a few hours every day or so, and take the weekend hospital shifts, while working fulltime. He joined and remains active in the Rotary Club, a service organization that works locally, nationally and internationally on health and education issues. He’s also become an avid cyclist and serves as a youth group leader and Deacon in our church. The only thing more important than these causes? His family: we have always come first. He will set aside any other commitment to be available when he is needed; that has never changed.

These sketches make both of my daughters (and my spouse) sound all glowing and goody-two-shoes, and anyone who has known them, realizes they are each real people and far from perfect. I have certainly journaled and complained (sometimes in very gentle, politically-correct terms) about the less-than-picturesque moments inside our family. Like all of us, my family members (living and departed) are each complex, imperfect and vitally intricate in character: gifted, troubled, challenged, determined, intelligent, cranky, beautiful (okay, handsome for Chris), moody, selfish, generous, always changing and growing.

My narrations cannot really depict the many Dana Farber and Childrens Hospital care providers who made Jessie’s life so rich, because she spent so much in their care. Many of them remain close friends and are still part of our lives. We had primary teams that followed Jessie for six years. Many people  knew her from her frequent visits to their stations or services in the hospital or clinic. And some people we met just a few times, or never saw at all, although they helped us. Nurses, doctors, surgeons, oncologists, geneticists, transplant specialists, pain management specialists, infectious disease specialists, GI specialists, lung and cardiac specialists, nutrition specialists, eye doctors, dentists, clinical assistants, nursing assistants, technicians, respiratory therapists, radiologists, radiology oncologists, lab technicians, pharmacists, anesthesiologists, therapists, counselors, playroom specialists, resource room specialists, medical clown units, music therapists, art therapists, volunteers, and even a visiting dog! Can you imagine how many people were involved in her life and her care?!

Sarah and Jessie in 2007.

Surely you can understand why my husband Chris and daughter Sarah will ride this weekend. We didn’t have a happy ending, but we had a special, memorable life together. Cancer didn’t define us, though it certainly shaped much of our life as a family.

We want even more for other children, other families. We want happy endings for everyone. Actually, we’d like empty oncology units and transplant rooms and eventually we’d like to put those units of the hospital out of business, because everyone is cured, and cancer is an archaic fact.

Although Dana Farber and other research organizations have improved the odds for many children and adults, we’re not done yet. Not even close. All of us know, or will know, someone affected by cancer. It might be in our own bodies, or diagnosed within our immediate family or a close friend or colleague. It will touch your life, if it hasn’t already.

Our goal, for now, is to work toward happier endings. To tell anecdotes with more satisfying results and even greater chances of long-term remission and healthy lifespans. We have come a long way. 50 years ago, leukemia was a death sentence for virtually all children. Now their chances are amazing. The same is true for many other pediatric diagnoses, though not all forms of cancer have such good outcomes.

Regardless of how optimistic the statistics may be, it’s all or nothing when it’s a single life. Sure, the chances of survival are about over 80%. But you can’t be 85% cured. In the end, you have it or your don’t. You stay in remission, or you don’t. It’s 0% or 100%. We want 100% for everyone.

Eventually, you will be able to be vaccinated to prevent some forms of cancer. Or there will be a genetically-tailored response to your specific cancer, that will target only the bad cells and not harm the remainder of your body on a cellular level, as it arrests and eliminates the cancer. It’s begun already.

For more facts and figures, I offer you these resources:

Our town’s local weekly newspaper, the Ipswich Chronicle, interviewed our PMC participants. Movingly, they asked the question, “In one word, what emotion best captures your experience in the Pan Mass Challenge?”

The answers in our town were these:

  • Chris Doktor: Gratitude. I continue to be grateful for that I can ride in memory of my 9-year-old daughter Jessie and do so with my surviving daughter Sarah. I’m grateful that I can share this experience with her for the fourth year. I am also grateful Dana Farber kept Jessie aliveby keeping her cancer in check for six years. I am grateful research continues to expore answers to this dilemma we call cancer.
  • Bill Gram: Faith.
  • Bob Caruso: Inspiring.
  • Sarah Doktor: Challenging.
  • Diana Lannon: It’s difficult to distill down to one word what emotion best captures my experience in the Pan Mass Challenge. I actually tjought about I on my ride today. I would say the words are gratitude and love.
  • Paul Slack: Sorry but I have three – love, sadness and hope.
  • Logan: Transformational.

Here’s a link to learn more about or support Chris  and Sarah  or Ipswich riders.

Me? I’ll be there at water stops and the finish line with camera, extra water, emergency gear, and cow bells. Clang-clang! Someone has to be the crowd along the sidelines for this event. When Chris was asked by the Ipswich Chronicle reporter about his favorite part of the ride? He answered, “Seeing all the people along the route – waving, offering water, holding signs of thanks and encouragement, reaching out to touch a hand … as well as arriving at the first water stop — all the excitement and enthusiasm of the volunteers is inspiring!”

Cravings

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How do you know when what you want is also what you need? When they’re opposites? Want can compromise you, as much as it might entertain or satisfy you. While need is essential to survival and greater quality of life.

Work of artist Erin Hanson

Sometimes you mistake one for the other. A craving can become a force so powerful that it feels like a requirement, something you must fulfill, or else you might not make it through the day. This link will lead you to the work of artist Erin Hanson, who makes some very witty observations about this issue.

How do we tell the difference between want and need? Oh, I think we know. Sometimes we deny or ignore it. That can be part of the danger to ourselves (and others). But often enough, we know what can be most satisfying and also most damaging at the same time.

We all have soft spots. Me? I have plenty, I admit it. I know it.

Food is an old friend, and a particular weakness. I sometimes find myself by the pantry or fridge, craving a bite. Not as tempting as it once was, because I have recognized and worked hard to gain balance when I lost it, but oh, there are times when I want something … Sweet. Salty. Mmmmm. And it’s not because I’m particularly hungry. Could be stress. Boredom. Bad habits. Social routines.

Sometimes we have instants of epiphany. When we actually look at ourselves, and what’s happening, and see just how out-of-balance we’ve gotten. I’ve had my share of wake-up-and-smell-the-coffee (okay, tea for me) moments. Really, these I’m-not-in-control-and-this-has-gone-too-far insights can be as powerful as being converted to a new religion. Transformative.

Then again, sometimes someone else has to express their concerns: a loved one, friend, colleague or medical practitioner. Maybe you have to hear it from someone else to realize that there’s an issue.

Work of artist Erin Hanson

Mainly, I think, you have to be ready to listen. Then to admit that there’s an imbalance you need to pay attention to. Maybe it’s not an addiction, maybe it’s just too much of a good thing, but there’s still a message that it’s time to pause, focus, and regain equilibrium. Or perhaps it is that dangerous; you must realize that something vital is at risk. Your health. Your safety. Others’ safety. Your relationships. Your work. Your home.

That’s the start. But what comes next? The long, slow and imperfect journey of changing bad habits, and realizing the context that leads us toward the not-so-good-for-us decisions. For many behaviors and obsessions, there’s a state of mind and series of events that lets us negotiate with our own conscience, and make deals, and excuses, and half-hearted promises that we won’t keep for ourselves or anyone else. There’s a rush and a reward, short-lived as it might be, that causes us to desire this activity in the first place. Maybe there’s also a social context, among a specific group of friends or acquaintances, that reinforces this choice. Or a true payoff, some measurable value that makes it hard to offset.

Regarding behavior around food, I’ve learned to debate with myself. Have a little discussion. Test the signal from my mind that says I’m hungry. Sip some water and wait 10 minutes. Do I still have the same craving? Or did it fade away? Would a small portion be sufficient to feed the craving, or should I substitute something else, or just ignore the craving entirely? I consider these options, and try to choose the most effective one.

Work of artist Erin Hanson

There are other tools. Maybe you have to keep a journal, to make yourself accountable to yourself, and actually acknowledge, list and monitor (by quantity of time, distance, volume, servings, whatever measurement) your own patterns. Weigh the decision against its cost, such as the exercise involved to work off what you’re about to ingest. Ask yourself … really picture this … how do you feel after you nibble on that snack (or sip another drink or take extra time in front of a screen or buy another scratch ticker or spend free time sitting or lying down)? Can you stop? If the picture in your head isn’t nice (your stomach or your head is upset, you’re disappointed in yourself and diving into a loop of negative self-talk, because you indulged and then over-indulged) that’s a deterrent. Who wants to do something temporarily pleasurable, if the result is that nasty and self-loathing experience on the other side? Visualize who you want to be (maybe an image of yourself fit, happy, connected to other people, active, balanced and in control). And yes, you can pray. Ask for help from a power outside yourself.

What else can give us the same … or maybe a better … fulfillment? Depends on your longings, and what will sate them instead. Also depends on how hard the work is to overcome those cravings and desires, and find an alternative that slowly becomes your new passion. When you want a cigarette, getting on a bike might not sound tempting at first. But over time, the feel of the bike ride, the beat of your heart and lungs, the place your mind can go, will be it’s own sort of rush … it’s own form of high.

Maybe you can’t do it alone. Maybe you need support. Share your goals with your family, so they can also help you (if they’re willing to help versus sabotaging or enabling). Tell your friends, too. Work with a counselor or caregiver. Join a group. Take a class. Find a trainer or a coach, a mentor or a sponsor.

I grew up in a family filled with “isms.” Substance abuse. Mental health issues. Depression. Bipolar. Weight. Money. Physical abuse. Lots of tough stuff (though plenty of goodness, too), and most of it quietly tucked away, until it couldn’t be hidden anymore.

Based on that experience, I would say, “don’t hide it.” Don’t make it a secret that you or others must keep. When it’s possible, and there are circumstances that might make that inadvisable, but more often it’s safest to be open, you can claim it. Make it something that is part of who you are, and something you can live with, and find balance around. You are stronger for it.

Work of artist Erin Hanson

And you know what? You may slip. We’re humans. We backslide. And we have to let that be part of the process, and be kind to ourselves, but also disciplined. And expect the best. Want the most. Try to honor our bodies, our minds, our spirits, our relationships, and that spark of the sacred that is burning inside each of us.

I have named one of my own habits and temptations. But we all have them, and they can take many forms.

Challenge yourself, in the face of the old habit that might be slowly stealing away other aspects of your life. Do I need to invest more time in front of this screen, as riveting as these posts and search results seem and as tempting as that next clickable link would be, instead of doing something else like reading a book, spending time in conversation with a loved one, or going outside to do something more active? Do I need another bite of comfort food, as much as it might sound very consoling right now, rather than a glass of water or a walk? Do I need another hour of work, as simple as it would be to stay here and keep going on this project in which I’m involved, instead of putting down this labor and allowing myself to be more available? Do I need to sleep in for 27 more minutes, as cozy as it is under these covers in this bed, instead of waking up and moving? Do I need to use the car to run that errand, as quick as it would be to complete the task, when a walk downtown will take more time and use more energy and slow me down … maybe in a positive way?

When possible, our lives can be about letting go of want, and discovering how to fulfill need. Yoga. Fitness programs. Self-help education. Motivational classes. Many forms of physical-spiritual practice or faith lead us in this direction. Letting go. Desiring less. And conversely, having more.

The poet Linda Pastan wrote about this issue.

What We Want

What we want
is never simple.
We move among the things
we thought we wanted:
a face, a room, an open book
and these things bear our names–
now they want us.
But what we want appears
in dreams, wearing disguises.
We fall past,
holding out our arms
and in the morning
our arms ache.
We don’t remember the dream,
but the dream remembers us.
It is there all day
as an animal is there
under the table,
as the stars are there
even in full sun.

We are all full of goodness. And we all have passions and pastimes. Often we also have cravings or yearnings, some of which are good for us, and some of which can hurt us. There’s always a chance to shift the balance. It may not be easy. It may not be 100% consistent. But it’s possible. And it makes a difference, for ourselves and those with whom we seek connection.

Muscles and Miles to Make a Difference

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Sarah and Chris during one of the PMC rides.

In a few days, my husband Chris and daughter Sarah will set aside the gentle appeal of speech. They have many stories to share, but for several hours, theirs will be the language of action, instead. This Sunday (August 5), they’ll put their feet, calves, quads, thighs, gluts, abs, spines, pecs, shoulders, arms, biceps, triceps, hands, lungs, hearts (okay, all their muscles) and minds to work in the annual Pan Mass Challenge bike ride. It’s their fourth year as a father-daughter team in this event.

It’s a case of deeds versus words. It’s putting your body and your spirit into gear, once a year, because you can. Riding for a cause. Making a difference. Remembering someone you love. Celebrating someone who survives. Honoring someone who currently lives with this challenge. Or marking a milestone in your own journey, too.

Changing the world, one mile, one life, one revolution, one ride at a time. It sounds dramatic, doesn’t it? Yet it’s true, and it’s possible for any of us.

All of Chris’s major bike rides support charitable causes. He already completed the Coast of Hope to raise funds for our family’s nonprofit foundation Bright Happy Power that works with children and families living with cancer and the ADA’s Tour de Cure to raise funds for diabetes research, an illness that impacts many of our friends, including several children and young adults here in Ipswich. He’s riding this weekend in the Pan Mass Challenge (his 7th year) to raise funds for cancer research through Dana Farber’s Jimmy Fund. He’s also riding later this season in the ALS ride to support research for an illness which affected fellow Rotarian Lou DeGeorge and which has recently changed the life of a peer’s 20-something son.

Over the past few years, Sarah has joined him in the PMC. It’s now a father-daughter tradition.

Even before Chris started riding, back in 2002, cycling teams rode in honor of our younger daughter Jessie, who was originally diagnoised with leukemia in 2001. The first team to ride as her partners were the Carver family and the North Shore Cylcopaths. She was their Pedal Partner. Within a few years, a local crew of Ipswich friends and North Shore colleagues formed a team to ride for Jessie …

Jessie and Sarah together on bikes.

There are also Kids PMC events that make it possible for children to ride, too. Jessie even participated in a Kids PMC in Topsfield while she was on treatment (see a PMC Kids video that features many children … you’ll find Jessie in a straw hat and blue dress).

The big PMC ride remains an annual family tradition. We still believe in its power. Chris and Sarah ride. I show up as SAG wagon (their own support vehicle) and cow bell chorus. I’m sure Jessie’s paying attention, and putting wind in their sails.

Many of our friends are survivors. Their stories are riveting; their experiences were difficult, but there’s a happy ending for lots of families, including Ipswich folks. We see some of them grow up and ride!

We surely know that the work of Dana Farber’s research programs (which is implemented in almost every cancer clinic and hospital around the world, by the way) gave us extra years with Jessie … providing alternative treatment regimens after she relapsed twice with leukemia. She had extra time among us: long enough for her to change many other people’s lives during the brief span of her own.

Make no mistake, pediatric cancer remains the leading “natural” (aka, disease-related) cause of death in children. This is a mortal illness for too many children and adults.

Yet research has made a major difference for many children; it has changed the course of many forms of diagnoses. This isn’t a hopeless cause; we are actually making headway.

Have we … I use the word “we” because our family and every other rider participating in the PMC surely feels invested in this effort … have we identified the causes and cures of every form of cancer? No. Have we narrowed down and improved the long-term survival chances for many children (and adults) diagnosed with varied forms of cancer? Yes. How many more lives can be saved and improved? Many. Have we promised a happy ending to every child or grown-up living with a form of this illness? No. Yet have the “odds” improved? Yes. Are there more survivors? Yes. Greater reasons for hope, decade by decade, year by year? Yes!

This is our family’s cause, for reasons that are obvious to anyone following along. Maybe it’s yours, too. Or maybe there’s something else that has become a personal challenge for you.

Regardless of what issue you care about, there’s something you can do. Volunteer. Walk. Ride. Run. Become a supporter. So many ways you can be part of the collective effort to change the course of events around specific problems.

Words are great. They’re my medium, a lot of the time. (You know I like them, because I use lots of them.) Language has tremendous power to affect people’s opinions or touch their feelings.

Yet actions? Deeds? These are the commitments that get work done.

Me? I sometimes walk for Childrens Hospital Boston (helps the hospital where Jessie was treated for 6 years). I volunteer at a water stop for the ADA’s local Tour de Cure ride (supports fundraising for diabetes) and I volunteer on the course for the Rotary 5k Run and Walk (fundraising for high school scholarships). Of course, I coordinate the Coast of Hope bike ride. Those are my athletic commitments, if you will. I’m more a behind-the-scenes volunteer as opposed to an event participant, but that’s part of what allows these events to succeed, too.

Cowbells as a call to action? Believe!

Meanwhile, our family believes that where Chris and Sarah are riding, Jessie rides along, too. Of course, you’re invited to support Chris and Sarah‘s PMC ride.

But really, this is also a reminder to choose your own cause, whatever it may be, and however you may decide to become involved. You are powerful. You have the potential to be a change-maker. You can create hope. And you’re not alone. In most cases, your time and talent is combined with the work of others. Together, your power is exponential. Your efforts make a difference. Really.

Do you hear the cowbells clanging? Ride, Chris and Sarah, ride!

Discombobulated and then …

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Mill River General Store porch by Chris Doktor

What do you do when you can’t finish what you set out to do, and have to change your plans? What do you do if you’re in a place you didn’t expect or want to be? How do you respond?

That’s been a big question on the past few youth group trips, and it was a challenge again this past weekend. Chris and I spent three days in Western Massachusetts, with all the gear and supplies for bike riding. We were part of First Church’s summer youth group trip. (For sake of clarity, let me say that I was the designated van driver, not a cyclist. I followed the riders’ route with the support vehicle that includes first aid, water, snacks, dry clothes, bike rack and extra seats if anyone needs a lift.)

Indeed, adults and teens cycled about 50 miles through 3 states in two days. That’s less than our group wanted or planned to do, but our riders accomplished some portion of their goals, anyway. We did it, despite setbacks such as severe storms.

On a prior trip to Staten Island at the beginning of the summer, a soul-searching discussion about responses to big setbacks, problems and disappointments moved a larger group of students and adults to tears. Later they focused on “what is your rainbow?” in a time of storms and floods. Adults and teens sought insight into how they discovered hope or resolution when they found themselves in trouble.

This weekend, our challenges weren’t as dramatic, but similar themes arose again. What happens when things don’t go your way? What do you do about it?

In part, our group decided to “go for it.” They rode out beneath overcast skies in chilling, heavy downpours, climbing steep hills and braking cautiously as they descended again. They wound along scenic rural ridges, wooded peaks, pewter-colored waterways, through small villages and bustling town centers. They used the driest, earliest hours of Saturday and Sunday to capture those experiences. By the middle of each day, bad weather heightened to thunder, lightning, storms and a few flash floods. Our crew had to stop riding.

Yes, our youth group managed to make the best of each day’s forecast; they sat in the saddle for a few hours, and did what they’d come for. Yet everyone wanted more. More miles. More hours riding. More adventures on their bikes.

We also cancelled tempting destinations like waterfalls and scenic farms. We opted not to attend the outdoor Tanglewood concert. We gave up some of our plans for fun.

So we had to adjust our expectations, adapt to the change in plans, and find something else to do with all that extra time. We had many reactions. We were … Restless. Surprised. Tired. Annoyed. Sad. Distracted. Nervous. Irritable. Weepy. Playful. Hungry. Creative. Silly. Hopeful. Resourceful.

What didn’t we plan for?

  • Wash outs on roads we’d just traversed.
  • Power outages in villages where we took refuge.
  • Unavailability of road maps, just in case we got lost, GPS didn’t work, or our printed directions didn’t have enough detail.
  • Being stuck half-way through the route by impending storms, and needing vehicular rides for the entire group to a safe, dry shelter.
  • Hours of free time indoors during rainy weather.
  • Cutting our whole weekend short, because it didn’t make sense to attend an outdoor concert later on Sunday, in such torrential conditions.
  • Language barriers, since one of our younger guests spoke more French than English.
  • Lugging along more food than we could ever consume.

What did we have going for us?

  • A warm, cozy starting point from Bob Lee’s home in the Berkshires, with showers and beds.
  • A van loaned to the church by Ipswich Ford, that was big enough to transport our gear and members of our cycling group, in two back-and-forth runs, to a safe dry place when our first day ended very suddenly due to bad weather.
  • The unplanned-for hospitality and emergency shelter of the Mill River General Store’s front porch, with hot coffee and warm muffins, in the worst of the storm.
  • Later on, a spacious, warm and dry UCC church to host us on the second night, with a fabulous kitchen and plenty of space for games and group worship and community meals and sleepovers in the heart of Great Barrington.
  • Great meals and plenty of food for healthy cuisine.
  • Chocolate.
  • First aid kit for falls, cuts, bruises.
  • All our safety gear and experienced riders to make sure we were safe.
  • A local guide (Bob) who knew every road and gave detailed turn-by-turn directions to get us back home again.
  • Coffee (or in my case, black tea).
  • Secret buddies who gave little gifts to each other all weekend, for more fun and fellowship.
  • Good temperaments among our participants, both young and old, willing to go with the flow and find new ways to engage each other in fun and fitness: yoga or abdominal workouts, games of Simon Says and cards, cooking, washing up, journaling, worshiping, cycling, and talking.
  • Members with enough French, especially one eloquent high school student, to translate sufficiently that our young visitor eventually relaxed, made friends, and began to participate more fully in communal experiences by the end of the weekend.
  • The magic of card games and other forms of play to bridge the gap across culture and languages, and connect people of different ages, genders, traditions and nationalities in a common experience.
  • The universal communication of music. Two youth members, Grace and Anna Josiah, played Bob Marley tunes on the ukulele. Our new friend Lucas grinned broadly through that impromptu prelude to our last gathering of the weekend.
  • Even when you know the lyrics, they’re more beautiful when everyone tries to sing along, off-key and in more than one tongue, because we’re all unified, at least for a little while.

Since it’s a faith-based group and outing, we read scripture as part of the weekend’s activities. One of them, Matthew 6:25-29, talked about not worrying. Easier said than done, sometimes. After all, I was the SAG wagon driver (support vehicle that followed riders during the weekend, and yes, I got lost, and yes, we had storms and a hurt rider and plenty of adventures). Plus I’m also a … well, let’s admit it … a mother. And mothers, by nature, tend to worry.

As it turns out, though, “don’t worry”  worked as a theme for us. As a message, in the form of a raggae song, it closed the gap in our group, drew smiles on an overcast day, and brought unity. Our youth sang …

Three Little Birds
by Bob Marley

“Don’t worry about a thing,
‘Cause every little thing gonna be all right.
Singin’: “Don’t worry about a thing,
‘Cause every little thing gonna be all right!”

Rise up this mornin’,
Smiled with the risin’ sun,
Three little birds
Pitch by my doorstep
Singin’ sweet songs
Of melodies pure and true,
Sayin’, (“This is my message to you-ou-ou:”)

Singin’: “Don’t worry ’bout a thing,
‘Cause every little thing gonna be all right.”
Singin’: “Don’t worry (don’t worry) ’bout a thing,
‘Cause every little thing gonna be all right!”

Rise up this mornin’,
Smiled with the risin’ sun,
Three little birds
Pitch by my doorstep
Singin’ sweet songs
Of melodies pure and true,
Sayin’, “This is my message to you-ou-ou:”

Singin’: “Don’t worry about a thing, worry about a thing, oh!
Every little thing gonna be all right. Don’t worry!”
Singin’: “Don’t worry about a thing” – I won’t worry!
“‘Cause every little thing gonna be all right.”

Singin’: “Don’t worry about a thing,
‘Cause every little thing gonna be all right” – I won’t worry!
Singin’: “Don’t worry about a thing,
‘Cause every little thing gonna be all right.”
Singin’: “Don’t worry about a thing, oh no!
‘Cause every little thing gonna be all right!

In preparation for our closing circle, as we reflected on the weekend, everyone drew symbols or scenes about what the weekend embodied for each of us. We used scratch art to do this, so every page started out with a black wax coating on it. (You use a wooden stylus to scratch away the top layer, exposing colors underneath.) Your work reveals vibrancy in the shape or pattern of your choosing. Even the act of clearing away the black coating, and finding something special underneath, was a symbolic act.

  • The common elements among our drawings were rain clouds, spiky suns, bikes and riders, curving roads, trees and mountains.
  • One youth drew interlocking circles, as a symbol of connection, since he was only able to participate in part of the weekend, but felt like he’d been tied to the entire experience.
  • Someone else drew a border of spoons, reminiscent of our silly, laughter-filled card game called “Spoons” (which is a game that requires no skill with cards or numbers, but requires lots of monitoring other people to see who has gotten four-of-a-kind and has taken the first spoon … this game is like musical chairs, so everyone sneaks or grabs for a spoon, and the last person to reach for one, won’t get a spoon, and loses that turn, accumulating points in the form of letters, aka, S-P-O-O-N).
  • Our French-speaking member wrote, “Merci” alongside his whimsical sketch.
  • People drew and spoke about the metaphor of journeys as a path without beginning or ending.
  • Or the cycling as a roller coaster, uphill and downhill, exhilarating and alarming in turns.
  • One rider drew the wheel of life with the spokes of the experience connecting the outer circle to the inner hub of water and rain.
  • Another drew herself riding with her hair blowing, depicting the chance to think while out in the silence and solitude of nature.

(Plus, of course, if you follow this journal, or  read our www.dok.com blog during the years with Jessie’s childhood cancer, you know that riding bikes is one way that our family continues to make meaning out of events in our life. In a way it’s a a sacred, spiritual and healing act.)

We closed the weekend with the song “Let It Be” by the Beatles, after reading Psalm 139 about being claimed and known by our Creator at every turn in our path, regardless of how far we may go. The Beatles lyrics answered, in their way, the conversations and questions we posed to ourselves all weekend, and the very life lessons we learned as we problem-solved through storms and other challenges. I don’t think you have to belong to any specific faith to be moved by the Beatles, even if they mention Mother Mary in this song. It calls to all of us, and gives us some response to the universal question, “What do you when you can’t complete the journey what you started, when your plans change and you’re rerouted on detours toward a different destination entirely, and you must choose some other activity and goal instead, or you cannot continue at all?”

Let It Be
performed by The Beatles (written by Lennon/McCartney)

When I find myself in times of trouble
Mother Mary comes to me
Speaking words of wisdom, let it be.
And in my hour of darkness
She is standing right in front of me
Speaking words of wisdom, let it be.
Let it be, let it be.
Whisper words of wisdom, let it be.

And when the broken hearted people
Living in the world agree,
There will be an answer, let it be.
For though they may be parted there is
Still a chance that they will see
There will be an answer, let it be.
Let it be, let it be. Yeah
There will be an answer, let it be.

And when the night is cloudy,
There is still a light that shines on me,
Shine on until tomorrow, let it be.
I wake up to the sound of music
Mother Mary comes to me
Speaking words of wisdom, let it be.
Let it be, let it be.
There will be an answer, let it be.
Let it be, let it be,
Whisper words of wisdom, let it be

Always A Dad

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Yesterday our family either rode or worked as volunteers for the Coast of Hope bike ride. Can we consider that our big Father’s Day gift?

Or maybe that’s today, when Chris and Sarah leave together with the First Church’s youth group on a week-long service trip in Staten Island. They will spend time in soup kitchens and shelters, working with people living with AIDS, homelessness and other conditions.

This hands-on work is how Sarah connects with her faith and spirituality, and it is a tradition she shares with her dad. He wasn’t planning to go this year – too busy to take off the week from work – but she asked, and he always says YES. It may be their last year doing this, since she’s off to college in the fall.

On Saturday during the Coast of Hope bike ride, we witnessed fathers and sons, fathers and daughters, brothers, husbands, grandparents, buddies, cousins, colleagues, teachers and students … so many families and friends and combinations of relationships, as people rode together. Regardless of whether we have been born into or adopted into a family, or taken into kinship through others forms of affinity, we are blessed and nurtured by the men in our lives. They play so many roles: our genetic families, and those who come into our lives in other ways, through marriage or community, work or sports, passions and needs. They have been our coaches and instructors, our counselors and advocates, our coworkers and our guides, our parents and our children, our friends and loved ones.

These men have been the people riding ahead, beside or behind us.

And of course, there are those carried in our hearts, who ride along where we cannot see them, but whose presence is always imprinted where we can feel them.

Yes, women and girls rode, too. Of course they did. Mothers and daughters, sisters, lovers, friends.

Yesterday our youngest rider was 6, and she rode with her father. They finished the 12-mile course together (and last week she ran a 5k). She’s a cancer survivor! And her father? He is probably one of her biggest fans.

The oldest riders on our course? Fathers. Grandfathers. They have sprawling connections and families across many states and intertwined through many bonds over the decades. And they celebrated their weekend with us, in order to help others.

They all rode beneath the shower of origami cranes folded by school children, and tossed into the air by firemen from Ipswich, one who came with his daughter to share the experience.

Who wore the bib #1 yesterday? Chris. It’s tradition. He was the visionary who originally suggested the idea of the Coast of Hope ride. And signs up first every year. And cheers us on when we’re tired and overwhelmed. He rides in memory of our daughter Jessie. And in celebration of our living child Sarah.

Yesterday, Chris cycled from our house out to the starting point of Coast of Hope. And before he arrived at the school? He rode up the hill to the stone beneath the maples at Cowles Highland Cemetery. Visited Jessie on the way to the ride … then rode on to meet Sarah at the starting line, because Chris will always be a father to both of his girls.

More Bell

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I love cow bells at a bike ride. I prefer at least two in each hand, if possible. Loud and clattering. I’ve even given myself blisters, clanging them repeatedly for scores of riders at charitable events.

We’ll have bells for volunteers at every stop along the Coast of Hope route. Hopefully some team members will get a chance to use them. I’d like to hear back some reports of enthusiastic noise.

Some riders love the peal of the bells. The acknowledgement of their ride as they come to each stop.

Others arrive, and want quiet and peace, not a headache-inducing racket. So maybe we put the bells down for a few minutes.

But, hey, I live by the famous line from Saturday Night Live, “More cow bell!” (I’m including the link, if you need a chuckle. Link: http://www.ebaumsworld.com/video/watch/719364/)

Okay, they’re rather tinny. Not the deep-throated call of bells made from fine metal. Like ones in a steeple, or even the chiming sound of choral bells. Ones forged with better shape and different clappers.

These go … clink-clonk. A chorus of them sounds surprisingly cheerful, though.

As an interesting piece of trivia, a few hundred years ago, in the late 17th century, the residents over in Essex wished to raise their own meetinghouse (it served as their church, as well as a gathering place for communal government). But the head of the local Ipswich parish, to which Essex folks belonged at the time, disagreed with their request. While the matter was in legal dispute, the men of the Essex parish were ordered to cease work on their meetinghouse.

In a clever skirting of the unpopular ruling, the women of the Essex community helped raise the structure instead. They hadn’t been ordered to stop, so they kept building.

Almost a century later, Essex congregation hung a bell designed by Paul Revere in the structure’s steeple. It was cast from precious metal collected throughout the local community.

Our cow bells? No fine silver in sight. But if you’re the one who has ridden long miles, and needs a boost, wouldn’t you be moved by the sound of someone’s cheering and appreciation? And the song of a few happy bells lifted for you? Listen for them on Saturday

Our Coast of Hope mantra: “More cow bell!”

Filling Up Origami Bellies and Human Lives

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We have  a little more than 24 hours to go before the Coast of Hope bike ride this weekend. Then we set a flock of paper cranes in motion.

You know, we drop thousand of birds to launch the 100km/62mi Coast of Hope ride (and metric half and family rides). It’s an event that we organize once a year to help fund programs at Childrens Hospital Boston or to assist North Shore children and families living with cancer or other catastrophic challenges. (Most anyone who is reading this journal knows something about our family’s small non-profit foundation Bright Happy Power. The ride and the foundation were inspired by our personal journey through childhood cancer.)

Cyclists ride for lots of reasons. Because of the stunning North Shore scenery. Because it’s great cycling weather with quiet open roads. To be with friends. To exercise.

Or for a cause. During the Coast of Hope, parents, children, spouses, siblings and other friends and loved ones of cancer patients ride. Survivors themselves ride. Sometimes people on active treatment also join us.

Life doesn’t stop because of a cancer diagnosis. Or any sort of challenge. It might slow down. Take detours. Take us places we didn’t expect. But it doesn’t really stop.

And many of our riders choose their routes, and come out to ride or to volunteer, because they want the hours they spend this Saturday to make a difference.

If life stopped because we were scared or in pain, or too dreamy and totally sated, or because we’d heard words we never expected to hear or felt emotions we never imagined experiencing, we’d never do anything. Instead we – we as human beings — continue.

Yes, we might be transformed. Sometimes looking at the world from a new perspective. Moving in a different direction, at a changed pace, with altered values or capabilities or relationships. Yet we are always moving and interacting, affecting the fates of others at the same time we are shaped by those whose paths intersect with ours.

After all, life is what we experience as we go along. It’s an accumulation of daily moments between peaks and valleys, as well as our highs and lows.

If we only counted big moments  – good or bad – ours would be a brief span of time.

Our lives add up to so much more. Every day, all the time, with whatever seconds and minutes and hours we’re given.

Measuring time is one sort of standard by which to quantify life. Me? I have witnessed that quality matters just as much. You can do a lot in a little time.

Meanwhile, my mind is filled with numbers. Although math isn’t my favorite thing, I’m counting everything right now.

I’m surrounded by minutia. I’m adding up miles. Ounces of Gatorade. Sizes of t-shirts. Gallons of water. Quantities of signs. Stacks of forms and maps. Ranges of bib numbers and the birthdays of riders. Total volunteers at every stop.

It’s easy to get lost in the equations. The volumes. To forget why we’re riding and what’s important about these Coast of Hope numbers. What makes it all meaningful?

Well, right now the youngest registered rider is 13. Our oldest riders are 68.

And today, 1500 origami cranes arrived in a package through the mail, all folded by a fourth grade classroom in Pennsylvania. Plus we’re receiving hundreds more folded by high school students and a Brownie troop. We’ll drop about 3,000-4,000 cranes on Saturday (I haven’t counted all of them in a while, but there are lots).

You know, the paper crane could be just a square piece of paper. Or a lesson in transformation and empowerment.

Guess what’s most magical about a paper crane? After all, it’s just a sheet folded in 12 steps (depending on whose instructions you use) to become a bird.

But how does it come to life? You breathe into it and inflate it.

Until then, it’s flat. One-dimensional. The air you exhale – that intangible element of life – fills the belly of the crane and causes its wings to open, its head to rise and its body to expand and tip in anticipation of flight.

And once you know how to make one, it’s a skill like reading, that you can pass on to others. Share.It’s easy to make one crane. But to fold a thousand? It’s more fun to do that as a community.

Aren’t our lives much like the form of a paper crane?

We could just count up the number of folds we make. Tight creases. Sharp points. Those might be the highs and lows. We could stop after just one bird.

But to emerge as a graceful shape, to be inflated with the possibility of taking wing? We need all the moments between every fold, the time it takes to read directions, the messy attempts and re-folds and crumpled sheets of paper as we try and try and try again, that lead to a bird’s profile … and the exhalation of oxygen and hope and all of those simple, casual, everyday moments between each step in the folding, to puff up the crane and animate it, make it three-dimensional.

Our lives, like the crane bellies, are filled with wind, spirit and breath. And in many ways, with an accumulation of time … both mundane and special moments.

Plus there’s something magical when we — birds or human lives — dance together in the air.

On days like Saturday, we gather up these hopes and wishes and promises, our fears and sorrows and hurts, our flock of hard-won folds and imperfect shapes, and set them free in the sky. They’ll flutter. They’ll spiral. They’ll soar. They’ll land.

And we’ll scoop them up and do it again and again and again.