Category Archives: Prayer

Lamps and Light from Three Traditions

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Don’t you feel, just a little, pricked and prodded with hope by the tiny lights that flicker around us at this time of year? So many people put lights in windows, wrap them around stairs, weave them through evergreens, hang them outdoors to sway in the wind … making the darkness a little brighter.

And it’s not so much that darkness is unwelcome … there is a slumbrous, restful quality to deep velvety darkness … we can close our eyes and sink into it. Rest. Find peace. Yet we can be warmed, held, and uplifted by each small light that is kindled within it, too.

So I wanted to share sacred texts from three traditions about lamps and light. This idea crosses many cultures and faiths. It is a reminder that we are all deeply connected.

In the Hebrew Bible or Old Testament, we find this passage: Psalm 18.28 —
“It is you who light my lamp;  the Lord, my God, lights up my darkness.”

And also, Psalm 119:105 —
“Your word is a lamp to my feet and a light to my path.”

In the New Testament, we find this verse: Matthew 5:14-16 —
“You are the light of the world. A city built on a hill cannot be hidden. No one after lighting a lamp puts it under the bushel basket, but on the lampstand, and it gives light to all in the house. In the same way, let your light shine before others, so that they may see your good works and give glory to your Father in heaven.”

In the Qur’an, we find the following passage: Qur’an 24:35, Ayat an-Nur, The Light Verse —
“Allah is the Light of the heavens and the earth. The Parable of His Light
is as if there were a Niche and within it a Lamp:
the Lamp enclosed in Glass: the glass as it were a brilliant star:
Lit from a blessed Tree, an Olive, neither of the east nor of the west,
whose oil is well-nigh luminous, though fire scarce touched it:
Light upon Light! Allah doth guide whom He will to His Light:
Allah doth set forth Parables for men: and Allah doth know all things.”

Comings and Goings: Light and Silence

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Last night, Chris and I stood at the international exit gate of Boston Logan’s Terminal E and awaited Sarah’s return from a semester of college abroad. She came home from Greece with lots of stories and a great craving for iced coffee! We welcomed her home. It’s our first Christmas re-assembling ourselves as a family that must travel to find each other. Sarah is an adult off and about in the wide world, and Chris and I are both living in Ipswich … but always busy somewhere else … so our family rhythms are now timed, in some ways, to her comings and goings.

And Jessie … she is all around us. But there will not be a reunion here. She will not, on this earth, flash her passport at customs, wink at security, and waltz in glittery red shoes through an airport gate, back to us.

There are many sorts of comings and goings.

One week ago, we climbed the swaybacked granite stairs to the top of hill and visited Jessie’s grave. As I’ve mentioned before, it’s a small pink stone set flush with the grass that spreads itself between the roots of two towering maples. It was an international night sponsored by Compassionate Friends, an organization for bereaved parents, to light candles for departed children everywhere. Many communities hosted vigils. Chris and I sat together. Laid on a blanket, staring up at the starry sky clasped between the crooked fingers of the naked winter trees. Lit candles. Put a tiny fir tree by the headstone, and hung one crane on it. Said a prayer full of thorns and hurt and sharp-edge stones and starry nights and hope. There

jessie_headstone

One week later, it seems as if we should hold that vigil again. In fact, its been held over and over, across the country and many other places, to remember the families in Connecticut. We’ve made circles, said prayers, wept, wondered, argued, shouted. I would also say, lighting a candle has its place.

I just don’t have any soft and gentle words for this. I don’t want to light more candles … for little ones … ever, for any reason. Not because of disease. Or starvation. Or natural disaster. Or violence. Not for any cause.

On the other hand, when Toni Morrison spoke at Harvard a few weeks ago, she reminded us about the silence of the Amish community after their own trauma. How they would not speak to the media. Instead their beliefs were enacted through deeds. They attended the funeral of the one who took away the lives of their beloved children. They comforted his widow and children. They raised funds for his family. They razed the schoolhouse full of unspeakable memories, and built a new one. They lived out their compassion and forgiveness, in the midst of their own great sorrow.

I’m not saying that’s the solution for every loss. Just that it is another path, another way, another example among many responses to devastating circumstances.

This weekend, I don’t have words at all. And maybe that’s best. Oh, so many voices already speak into this space, this trauma, this irrevocable tragedy.

And some are comforting. My colleagues found the inside themselves the prayers we all needed to acknowledge the darkness we felt and a reminder to reach, like the winter trees, for the starry night, the promised light.

Yet for me? Though my family knows much about loss, it is not this kind.

So rather than fill the air with more words, I will listen. Listen to silence. Listen to sorrow. Listen to songs. Listen to stories. Listen.

And yes, I will light a candle. It is one act I can offer, when I feel powerless, for my own family and so many others.

Autobiography … What Faith Do I Claim?

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One of the homework assignments in a few of my classes has been to write and present a Spiritual Autobiography. Hmmm. It feels self-absorbed and narcissistic, in many ways, to focus inwardly and then to talk about oneself in this context. To an audience of peers and professors.

Yet it’s an important question to pose for ourselves. We need to be familiar with this story. To know why we arrived at a Divinity School to study. And what we want as the outcome of this time in graduate school. What is our connection to the Sacred?

I think it’s a question that all people pose for themselves at one time or another. What does my faith mean to me? What do I believe? What makes meaning out of the world to me? What do I hold as Holy or Sacred or bigger than myself?

As students and facilitators, we discuss milestones. Events or people or experiences or texts that shaped our faiths. Or raised questions that we’re still trying to answer.

Many of us consider our personal views of the sacred or the divine. Identify the language and images we use around those ideas. For some of us, the language might be a Trinitarian Christian concept (God-Jesus-Holy Spirit). For others it might be monotheistic Allah or Yahweh. For others it is a Boddhisatva, or a Goddess, or a different deity.

For some folks, there isn’t a specific deity or name that defines what is sacred. Maybe there’s a “Creative Force.” Or for some of my classmates, connection with the Sacred is inseparable from being human.

Some of these ideas may sound like heresy, if you are uncomfortable with the reality that people around the world follow many different religions. If you believe, or your faith tells you to believe, that there is only “one true way.”

I don’t put the idea of “one true way” into quotations to belittle that concept … just to acknowledge that not all belief systems require that people follow their way of thinking, being and doing. Not all belief systems consign everyone else in the world to Hell if they don’t convert. I’ve never been comfortable or okay with the concept that my faith is the only faith, and that everyone else is outside the circle and isn’t going to be okay, isn’t going to heaven, isn’t going to evolve to the next phase of being … I cannot reconcile that. Never could. Still can’t. Maybe it’s not my job to work out that dichotomy. I’m just admitting that I don’t embrace it.

Interestingly, many people in this era consider themselves to be spiritual, but not religious. And it’s a fair distinction.

Religion, as such, is the human-made institution that grows up around the seeds of a faith. For example, Christ and his first followers, for instance, were Jews. They were not Christians. And initially, Muhammed and his people weren’t Muslims with a capital “M.”

These Prophets didn’t necessarily believe they came to start new religions. Simply to bring a message to the world.

What evolved afterward, the codifying, the creation of a structure of authority and governance, administration and policies and laws and practices … those aren’t the original parts of any faith. Those are Religion with a capital “R.” They are systems developed and put into place by humans around the original messages brought to us by Prophets. At least, that’s my simplistic definition of it, but I think it’s a reasonable one.

I’ve learned, in the past few weeks, that saying that there’s one version of any Religion is also naïve. Is there one acknowledge and universal experience of Christianity? Christians would chuckle if you ask that. There are so many variations on what Christianity means and how it is experienced, starting with the major division between Catholic and Protestant. And you can go on from there.

The same is true of Judaism and Islam. Do you belong, for instance, to a temple that is Orthodox or reformed? Is the Judaism of a temple in Brookline, Massachusetts similar to the Judaism on a kibbutz in Israel? Unlikely.

Some contemporary scholars say that is it more accurate to acknowledge many Islam(s) rather than one Islam. Because again, these Religions, though springing from the seed of one origin, have developed within varied social, historical, ethnic, political, economic, and geographical contexts. Islam practiced in the neighborhoods of Chicago is different than Islam experienced in London or living in a nation such as Turkey. It has markedly different interpretation and practices in Afghanistan or Iran than in parts of India or Indonesia.

Some people following a specific Religion (with a capital “R”) will say there is only one true version, and all other schools that fall under that same umbrella or label are false. Not the real thing. But which version of any Religion is real? True? The only authentic one?

Those sorts of schisms and arguments are probably another reason why so many people in the world don’t want to be called Religious. For a lot of folks, technicalities lose sight of the whole point of faith. It sounds something like this. “Who cares about the semantics? Can’t we just pay attention to the original message? Can’t we get back to the bigger reason for why we worship and pray?”

Spirituality, on the other hand, seems to be a more universal impulse in humans to seek a connection with something greater than oneself. Something that some of us would call Sacred. Maybe some others would call it Nature or the Universe.

More people consider themselves to be Spiritual than to be Religious. Many people don’t want to be categorized, labeled or aligned with a particular tradition. It’s feels like a bad word or way of imposing limitations, for a lot of people.

And in a way, although I realize I am fundamentally Trinitarian (Christian), I am also connected to other practices. Yoga traditions, which can embody Christian references as well as others. Aspects of Buddhism that I have been taught. Native American beliefs that I find in poetry, art and stories. Teachings handed down from Asian origins by mentors who instruct us about spiritual practices as well as physical ones in martial arts classes such as kickboxing or karate classes. Jewish and Islamic offerings that I share during special holidays with my community. Other influences.

I don’t discount or turn away from the beauty and truths that I find in other places, other faiths. I incorporate them. I learn from them. I listen to them. Maybe I learn their practices, when those may help to offer balance or healing in my life.

Yet I am also learning not to make the mistake that all these Religions or practices are, underneath it all, the same. That’s a dangerous mistake. These are different faiths. The people who claim them also experience and view the world through a somewhat different lens.We live in a pluralistic world; that’s okay. In fact, that’s complex and amazing.

Yet we can inform and inspire each other. We can live peaceably. Build community. Share a world together.

Obstacles as Blessings

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A wise person from my past once made the observation that we grow frustrated by obstacles. Yet if we look again, we might realize these are providential occurrences. Blessings.

For instance, we’re in a hurry to arrive at a destination. We’re driving. Ahead of us, someone is going slowly. Below the speed limit!

We grit our teeth, talk to ourselves, complain out loud, gesticulate and generally grow agitated. The woman making this observation, Rev. Sue Remick, challenged her listeners to reconsider whether the slow driver ahead was a problem or a gift. She suggested that this driver, going slowly and causing us to brake and travel at a more thoughtful pace, even causing us to arrive late, was placed in our paths to keep us safe.

Such situations – like a maddeningly slow driver, or losing your keys so you leave the house later than you’d like, or getting a call just as you’re about to walk out the door — could be read as cautionary signs. Blessings in our travels. Fateful moments that we could interpret as a chance to take a little time. Breathe. Pay attention. Stay safe. Slow down.

Some people call these moments “God winks.”

My kundalini yoga instructor has her class recite a specific chant three times at the beginning of many sessions. She also says the chant to herself three times before she turns on the ignition in her car. She believes that it is the difference between safety and danger …  this discipline that causes her to pause, focus, take a little extra care, and begin her journey with a breath of prayer to bless her way. She thinks those few seconds of repeating sacred words, invoking divine assistance, may have saved her life more than once.

I say this same prayer to slow a wheeling mind at night, or to calm me down when I’m angry or overwhelmed, and need to breathe slowly and deeply.

In any situation, you can be annoyed by the delay. Feel your blood pressure escalating.

Or you can breathe. Say a prayer. And try to be grateful for the frustratingly slow driver, or missing keys, or extra errand that sends you on a detour … and consider it a blessing. You may not know just what fate you have escaped today. Or what fate you have embraced.

Such an interpretation is entirely yours to make … but if the event is the same, regardless of how you respond to it, you might as well receive the benefit of it, yes?

After all, if you arrive safely at your destination, or even find yourself going someplace else altogether, you are one step further along your journey … wherever it may take you.

 

Self Care: Checklist from the Past (Still Works)

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Self care in difficult places. How do you do it?

Back when we spent extended periods of time with Jessie at Childrens Hospital Boston, it was easy to let go. To make excuses and just overindulge. To say to myself, “You’re under tremendous stress, so don’t worry about what you do to make yourself feel better. Just take the elevator, because time is more important than exercise on the stairs. And the breakfast pastries? Those carbs don’t count right now.”

But those indulgences did count. The cravings, the bad food, the less-than-virtuous habits, the lack of movement … it all added up. And I carried (and still do) the results of that lack of self care even now. I’m still regaining balance.

Now let me clarify, that given the constant crisis in which we often lived, I coped darned well. I only slept a few hours each night, but I was alert and functioning at a very high level. Always “on” …  checking monitors and daily numbers, being Jessie’s companion, working out Jessie’s schedule for the day (coordinating visits with friends for her, organizing therapeutic appointments, negotiating time on/off the IV so she could be more mobile, making a plan with her nurses for any other particularly difficult procedures, scheduling her daily ACE flush, participating in rounds with the oncology and transplant teams … later ICU teams … and any specialists), consulting with a variety of staff members at crazy hours of the day and night, and keeping up with Chris and Sarah either during their visits, calls or remotely (I was still handling Sarah’s schedule and organizing the logistics of her daily life, from a hospital room in Boston, through a network of phone calls among friends). We did a lot from a small room in Boston. But only because we had so many people willing to help. Chris and I were a team. And our community was an extended web of compassionate hearts and hands, willing to make almost anything possible.

Taking care of yourself and each other? Could depend on your definition, I suppose. In a way, when your child is diagnosed with a mortal illness, your sense of power, control and competence is already being put to the test. You can’t make her safe anymore. The disease wasn’t cause by your lack of vigilance, and it won’t be fixed because you pay extra attention now. And yet … you have been dealt a severe blow to your own self-image as a parent and member of a family.

Realistically, although only one body is affected, this kind of trauma happens to everyone. It ripples out and touches, affects, changes all family members … and also friends, peers, community. In my family? I think we all feel like we had cancer, though only Jessie truly did. And if she were here, she’d stomp her foot, raise her voice, and be quite clear that it happened to her body, it was her experience, and not mine. Not dad’s. Not Sarah’s. But in many ways … yes, it happened to all of us. Hurt all of us.

Below are some of the ways we managed self-care even in stressful places and times. Many of them would translate well to virtually any experience in life. Admittedly, it’s easier to dole out wisdom than to act on it … I attempted all of these things, but I was better at some than others, as I’ve admitted earlier in this entry. If you find something helpful on this list, that’s great.

  • Walk. Use the stairs. Exercise. The hospital staff used to pass out pedometers, so that parents could measure how many steps they walked. We figured out that several rounds up and down the halls of the hospital, as a parade of patients and parents riding or driving wagons, tricycles, IV poles and plastic cars, totaled a mile or more. (Jane Roper, the mom whose daughter has just completed her first month of treatment for leukemia, made a humorous post about her exercise regimen. It was familiar, I assure you.) Or you could go down to the garden, as Jessie often wanted to do, and run laps. We had a timer and stop watch, because she liked to be clocked for speed. Usually I was timing her, not running, though. Using the stairs? It was an easy way to improve cardiac health. I started, in the last few months of Jessie’s stay, to challenge myself to do this every day. I admit that down was easier than up.
  • Eat healthy foods. Homemade food didn’t really exist at the hospital. There was plenty of cafeteria food, and it was fine, but not home-cooked and not always very appealing … the best, healthiest menu item available was the soup from Au Bon Pain restaurant. Otherwise, we always asked for homemade food in containers … Chris would bring a stack of filled Tupperware for us to put in the unit’s refrigerator, slices of all the casseroles and meals that our friends were delivering to the house each week. I tasted a lot of those meals. Now kids on treatment have steroid cravings, or can only eat restricted diets, and sometimes homemade foods won’t work. There were lots of times when we gave up, and let Jessie eat whatever she wanted, but we worked hard to offer healthy alternatives, and not to buy into the “every calorie is a good calorie” mantra we’d been taught early in her treatment. Like us, she had to have healthy eating habits that could translate in and out of the hospital, as much as possible.
  • Say yes. When people offer to help, let them. Be specific and express your needs. It empowers others when they can’t actually do anything about the disease, but you give permission for others to “do something” in other ways. It heals everyone. And lets you focus your limited resources and energies where they’re most needed. We went through this journey, as I mentioned above, in the company of hundreds … possibly thousands … of caring souls, starting with our own extended families and our town of Ipswich. Meals. Pet care. Household chores. Rides. Visits. Errands. Childcare. Yard work. There are always so many big and small ways that others can assist … it takes a village to raise a family living with cancer, you might say.
  • Find a mental escape. A little every day. Late at night, when Jessie finally went to sleep, was the only time my brain could have “down time,” and I craved that almost more than sleep. I needed to go on a mental vacation. So I’d put on earphones (one side only, so I could listen for Jessie and the monitors, though) and if I was too tired to read a book, I’d watch movies … all of the movies made from Jane Austen’s novels or the Bronte sisters’ works … and the entire JRR Tolkien Lord of the Rings series. Fantasy. Period pieces. Stories so removed from the room where we lived, with beeps and clicks and small flashing red lights and digital numbers counting down, that I was transported away, could escape and unwind a little bit.
  • Swap shifts. Take a break. Most families had some variation on this routine; parents would trade roles. One would spend time at home, the other in the hospital, with brief overlapping periods. Some would do a night-day rotation. In our family, I’d do the week shift, Chris would come in and handle the weekend, and I’d go home, spend some time with Sarah, and get the only real sleep of the week. Chris would take a fresh look at the situation in the hospital, and problem-solve whatever he could.
  • Sleep. When you can, every day. Naps are good. If Jessie slept, sometimes I did, too. I’d start off in Jessie’s bed, until she was deeply asleep, and then I’d move over to the “parent bed” and attempt to sleep more deeply.
  • Counseling. Work on what’s happening. We had a therapeutic relationship counselors. We spoke (or in Jessie’s case, played) with the counselor as often as possible. We also did a lot of role-playing with dolls and stuffed animals. Writing stories or creative art projects.
  • Social time. We made play dates or therapeutic sessions for Jessie. Adult friends came down to visit, too. (And the staff were often friends, so you could have plenty of bonding time with them, too. Many of the nurses and a few of the doctors remain good friends even now; they allowed themselves to be more than just medical caregivers. If you think about it, we basically lived with them for extended periods of time.)
  • Shower. It helped to scrub away one day’s stress, stand for two minutes under the pounding hot shower, and then feel slightly more alert and a little more pulled together.
  • Clean clothes. Chris did loads of laundry and brought them in, exchanging dirty for clean garb … it was possible to do laundry in the hospital, but it was another chore and expense that we handled at home instead. And when the new bag of clean clothes arrived, it smelled like our detergent, our house, our …. Our lives. I developed a “hospital uniform” that was layered for temperature changes (we would travel to different areas that were hot or cold), could stand up to messes (blood or puke, for example), remained comfortable (I was often contorted into weird positions, crawling into bed with Jessie, playing games in odd spaces, etc), felt clean and loose (I hate tight constricting clothes) and forgave my lack of grooming, but made me feel presentable when dealing with teams of professionals who can shower and change into cleaned, laundered and pressed outfits with heels or polished leather. I was lucky if I got to brush my teeth. Jessie had a whole different wardrobe. It was mostly pajamas and some street clothes, all marked by her style. Lots of cute slippers or flipflops. Head gear, scarrves and hats. When she had certain kinds of cardiac catheters, we sought halter-style dresses, pjs and tops, because of how we had to maneuver her arms in and out of clothing.
  • Personal grooming. Take a little quiet time. I liked to get away from the hospital room, behind a closed door inside a bathroom to myself for five minutes (on oncology, ICU or transplant, parents shared a few bathrooms, so you couldn’t monopolize it for long). Completed small daily rituals. Brushed my teeth. Shaved armpits. Applied deodorant. Washed my hair if there was time. Changed my socks and undies. Phew.
  • Cry. Mostly in the shower. You can weep in private in a shower. Your child or spouse won’t know. And you have to let it out sometime.
  • Journaling. Wrote a daily blog entry that I would email to Chris, along with photos if I’d taken any, and that he would post for us. It was a joint effort to maintain the journal every day during Jessie’s treatment. Tried to make some meaning of this experience, and also communicate with everyone who cared about what was happening. Other people did it through scrap-booking, or video journals, Youtube posts, or online journals such as caringbridge or carepages, or MySpace or Facebook, or yes, old-fashioned diaries. In all kinds of ways, the experience was recorded. In addition, we kept a running Daytimer schedule appointment book that was passed back and forth, so that when we handed it to each other, we’d recorded such items as what medications had been given, what doctors had visited, Jessie’s vitals, her temps, if she’d eaten or gone to the bathroom, what she’d had been doing (active, tired, playful, cranky), any memorable quotes, and those sorts of details.
  • Communicate. Visits in person. Notes and letters. Pictures. Skyping. Phone calls. Facebook. Staying connected.
  • Photography. An amazing tool for family and the patient, too. The lens can be turned toward the experience itself, or pointed outward, away from the body and self, to whatever else draws the eye. The birds in the garden. Other patients. The hospital environment. Details. Also, we put up the prints of loved ones and home where Jessie could see them and visitors could look at them. They can help with visualization. And remind caregivers that this is a real person, a well-rounded family, and they’re only meeting us in one part of our lives, but through photography they can learn more about their patient as a whole person, with other interests and even appearance (like a kid outside on a soccer field with hair, not just bald in pajamas hooked to an IV pole).
  • Take a walk. We’d negotiate ten minutes to walk outside in the garden. Or while a nurse or therapist kept Jessie company, because she didn’t usually ever want to be alone in her room, even surrounded by staff, I’d make a quick run for supplies (toiletries from pharmacy, snacks from grocery or new titles and games from the book store). Sometimes I’d stand outside the front entrance to Childrens, ignoring the traffic and the pedestrians, and just lift my face to the sky. You don’t know how important it is to feel any kind of weather on your face … rain, sun, wind, snow … until you’re stuck behind a layers of insulated glass in an environmentally-controlled, filtered-air, cycled-water, colored-lights-in-the-ceiling unit … where nothing is real.
  • Caffeine. I wanted to sip chai latte every day. Some people love Dunkin Donuts for its coffee. I drink tea, so I went to Starbucks, because there wasn’t a Zumi’s in Boston.
  • Creativity. Sing. Dance. Make a video. Express yourself.
  • Pets. Animals are an amazing form of unconditional love and affection, and a safe place to put feelings you don’t share with anyone else. They won’t give away your secrets.
  • Create family time. We’d organize visits for the whole family, so Sarah remained connected, as much as possible, to events in the hospital, and Jessie got family time. We’d eat a meal together downstairs (during the periods when Jessie was allowed off the floor or in our room), play video games or board games, take a nap, watch a movie, read a book … just hang out.
  • Scream. Jessie had to yell in her bed. We worked on ways to handle rage. We’d close the curtain. She had a “monster” pillowcase on which she’d drawn the “mad monster” and the “happy monster”. She’d flip sides, and pound on the pillow until some of the anger dissipated. Or she’d just yell invectives at the top of her lungs. And why not? What was happening wasn’t okay or fair or anything resembling the childhood that any child might hope for. You can call it a “Book of Job” moment if you want. Other cancer parents have told me stories about throwing rocks at the ocean … hurling missiles at the biggest, most impassive element in their worlds … because it was the closest they could come to screaming and hitting at their Creator (or fate, or providence, or karma, or whatever … depending on faiths).
  • Pray. Yes, always. Sometimes the negotiation variety. “If I do this, will you do that?” We’d make lists of what we hoped for, and ask everyone reading the blog to pray for specifics. Good blood counts. Stability. Remission. Healing of infections. And we were sent all kinds of prayers. Stones with words in them. Angels as pins and small objects. Buddhist prayer flags. Quilts. Native American prayer wheel. Tibetan prayer wheel. Cards and mementoes from sacred places known for their healing power. Meditations and mantras. Digital messages with scriptural texts. Visits with our minister Rebecca. Songs. Oh, and all the unspoken prayers that arrived in every bag and box delivered to the hospital … embodied as stuffed animals, books or homemade food.
  • Laugh. We learned early about the power of laughter to release tension and restore balance. Another family from Ipswich, whose daughter was treated for non-Hodgkins Lymphoma, told us right away about a website called squirreltales.com and a list of funny observations called “You Know You’re the Parent of a Kid with Cancer when …”  We posted the lists on our hospital room door, and other pediatric cancer families also read them and guffawed out loud. We all understood the bizarre humor. Meanwhile, Jessie was a big fan of playing jokes and pranks. She had a fart machine. She’d draw fake rashes with washable marker. She’d make squirt guns out of clean syringes and shoot water at her nurses. Oh, the fun.
  • Seek alternate therapies. The staff used to arrange chair massages for parents. Once a week, if you were lucky, a masseuse would come work out the knots of tension, anger and grief in your neck and shoulders. (It might be the kindest and most intimate touch you experienced in place filled with masks, gloves and gowns.) We also had access to reiki, which didn’t require touch, and was safer for patients to use, too. And then there’s simpler therapy, like doing manicures. Believe it or not, that used to be a very helpful pastime for parents and patients alike. Except you have to leave one fingernail unpainted, so they can hook up one of the monitors that clips to your finger and reads vitals through your nail (I think it was O2 saturation, but blessedly, it’s been long enough that I don’t really remember, and I’m not going to research it for this blog). And yoga.
  • Know you’re not alone. It was humbling to realize that we were surrounded by other families also on the same journey. When you look outside your own door, or even peek around the curtain in a shared hospital room, you learn that this story has many variations and many outcomes. And you have a whole lot of companions, people you’d never meet any other way, who share this common experience and can understand it from the inside out, and may even have more wisdom or tips for how to cope. And as mentioned earlier, you also have friends and family participating, as much as possible, in this journey. And staff, who also become like family along the way. You really have a whole lot of support and community available. (I hope others also find this true, anyway.)

Okay, here’s a confession. I also had “drinking” on this list. As in, adult beverages. Margaritas. A beer. Social chances to unwind. But then I decided that was never a self care habit; it was more along the lines of eating too many carbs and making excuses. Not when you’re run down and strung out. So I can’t recommend it as a responsible therapeutic step. Even if it’s soothing.

The truth is, we also cope by indulging. Becoming childlike in our activities. We play video games. Eat sugary or salty foods. Misbehave in many ways. And that’s okay. That’s human, and it’s part of what happens in stressful times. It’s just good to find equilibrium, and use those other resources listed above to maintain some healthy counterbalance in life, and not tip so far over into any unsafe, destructive choices, that you can’t be a responsible, competent caregiver to your family or yourself.

A Time for Every Matter Under Heaven

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On a grey and misty day, when the sky is overcast, and I have heard sorrowful news from many places, about the return of cancer in a grown man’s body as well as a little child’s belly, why do I feel like crying?

Today, it seems as if even the sky weeps. It comes down, not salty or briny, but as fresh water, pattering gently, renewing the earth.

Don’t you sometimes feel as if the world recognizes your emotions? On a bright windy day, in kite-soaring weather, you might think the earth’s spirits are as feisty as your own wheeling, enthusiastic thoughts. Then at a solemn time like this, it seems as if the earth mourns along with families who are in pain. On occasion, our world echoes back, gently, tenderly, but on a greater scale, our human-sized grief.

After all, this fall of rain is the letting go of pent-up pressure. It is the release of something that was carried great distances, transformed and contained, until it grew too heavy to bear any longer.

Oh, rain. Fall. Fall. Weep, when I can’t. When I don’t have a particular reason to do so, except that I empathize with the news that comes today.

Mind you, no one asked me to worry about a distant family’s  pain or grief. But I do. I care. It happens, I suppose, because humans are wired to have emotional connection with each other.

So today’s journal is a meditation on the news I heard from other cancer families, as well as what I have witnessed as a companion of friends in hospice and reflections from inside our own family’s journey through twice-relapsed leukemia, transplant and its aftermath.

Right now there’s an ache that seems as big as the sky’s sorrow, to know there’s pain inside these families. A different sort of pain than first learning about a dangerous diagnosis. A pain more final than wrapping your head around the threat of disease, then lifting a chin and taking a deep breath, planting your feet and looking fate in the eye, and saying, “We can get through this. There are answers. There is something to be done. We have hope.”

It’s an altogether different reality, when the experts tell you, “There’s nothing more we can do.” And that’s the news that different families received recently.

For the family who hears these words, there comes a new squaring-off with time, fate and faith. When you hear such irretrievable pronouncements, you may …

  • Want to stay right where you are, put your hands over your ears; pretend you didn’t hear, you don’t know, you cannot see. Hope that if you just wait in one place a while longer, ignore it, deny it, then this bad news won’t be happening.
  • Then argue, and say you’re going to find an answer, even if you have to go somewhere else, ask someone else, do something more experimental and unconventional, because this cannot possibly be all there is.
  • Pray. Beg. Barter. Beseech the Creator for a miracle. Or peace. Whatever is possible.
  • Eventually hold on tighter to each other, try to fill silence with everything that needs to be said, begin to check off the best and brightest experiences on your loved one’s wish list, because the calendar isn’t on your side anymore.

For a while, perhaps you think it can’t be happening. It’s not possible.

Then at some point, there’s another transition. A realization. It’s happening. Oh, Lord, this is real.

Relapse? Recurrence beyond known forms of treatment, or beyond any useful medical response at all? It’s not fair. It’s not just. It’s not logical. It’s not … it’s not anything you can easily reconcile or understand. Not at any age, but especially not a father and husband who should justifiably expect decades ahead of him, or a little child who may never attend kindergarten.

But it happens, all the same. For many families, the result of treatment after diagnosis is ultimately hope, survival, and recovery. For others, there is this other other outcome.

I feel … just a little … like I understand families who must keep vigil, make the most of their living time together and perhaps … probably … although we always hold out hope for miracles … find ways to say good-bye. Please know that I recognize that every individual and family’s journey is different. And the outcome isn’t pre-ordained, though science may say it’s predictable.

Because I can tell you more than one story … from our own years on treatment with Jessie … about children who survived, inexplicably, with amazing outcomes, after every scan and test and medical opinion said it wasn’t likely, or even possible. So it’s okay to keep holding out, at least in some quiet part of you, or maybe in the biggest, loudest part of you, for the miracle.

Meanwhile, it may be healthy to immerse yourself in this place where you are. This time … of being together in the face of farewell.

Such experiences can be profound. Meaningful. A blessing in their own way, though very difficult and wrenching. (Or something else entirely.) It depends, largely, on the family’s response, and the support of their caregivers and community.

As a family continues on this journey, they do so in the way that seems best to them. Together they think about … and feel their way toward  …  how to be together in the time that is given to them.

No one, bearing witness from the outside, can say what is right for someone else. We cannot step into the path, and avert a difficult journey. Change what will happen. Only the family, the patient and their loved ones, sometimes with guidance, can choose their direction, do their best with what resources they have, and go wherever this path leads them.

Meanwhile, their medical caregivers? The ones who say there isn’t anything left to do? Likely they have tried everything. And despite this insight, some specialists continue to try to prolong life. Caught up in such extreme measures and momentum, medical caregivers … and sometimes guardians and patients themselves … may seek intervention. (Which could be a viable choice, but might also be more damaging. Such decisions are best approached with much consideration, since you can’t be sure of the results, or the cost to the patient’s wellbeing.)

In the optimal scenario, part of a family’s caregiving team is thinking about different values and assessing the whole situation from an alternate perspective. This person may take the opportunity to pause events. Often we need a trusted individual, hopefully a professional who is trained and ready to handle this form of advocacy, to take on that role. Perhaps this is someone neutral, from outside the family: a trusted mentor, counselor or medical practitioner. Who can credibly say, “Wait. There are other consideration here. Comfort. Dignity. Your belief system. Let’s balance the invasiveness of more treatment, more heroic measures, with measures that will preserve quality of time.”

The healing a family may seek, at such times, is not always recovery from the diagnosis. Not anymore. Instead you wish for a dignified and peaceful letting go, that involves family and friends, and makes the most of the time that remains.

Yet even the experience of being together, and letting go, can offer a form of healing. Solace. Peace.

In the case of families treated for cancer at Childrens Hospital Boston and Dana Farber, this journey is often guided by PACT, its Palliative Care Team. For many others, it also includes hospice professionals. When such a practice is integrated into the process, it provides immeasurable resources and comfort for families.

After all, in the face of such relapses, your concept of time changes. Your focus shifts. With additional support, the energy of the family can be aimed at the most important issues: emotional and psychological interactions with each other. Other bodily concerns can be managed by a team of people who are experienced in this area. Sensitive changes in moods, emotional state or mental outlook may also be tended to, by caregivers knowledgeable about what’s happening inside the patient and family’s hearts and minds.

Just for today? So soon after families have first heard and shared this news, and their friends are just trying to let it sink in? Perhaps they aren’t yet ready for all of those concerns and negotiations, those steps and decisions.

Sometimes, it’s too soon to cry. So you let the sky weep for you. Until your own tears come.

Finally, there’s this other truth. Believe it or not, the weather will change. The sun will flicker into view, grow hot and bright again. And even in this part of a family’s journey together, when people are probably starting to understand that they may say good-bye to each other, a person may want to stand in the light, turn her face to the sky, and laugh as loudly as possible. Cast a long purple shadow across the earth. He may wish to listen as the world echoes back his presence, while he has breath to move and shape the air, to fill the wind with the sound of a human voice, human joy.

This isn’t new wisdom, although I have learned it firsthand, over time, too. It is written in many sacred texts.

Ecclesiastes 3: 1-8

3 For everything there is a season, and a time for every matter under heaven:

a time to be born, and a time to die;
a time to plant, and a time to pluck up what is planted;
a time to kill, and a time to heal;
a time to break down, and a time to build up;
a time to weep, and a time to laugh;
a time to mourn, and a time to dance;
a time to cast away stones, and a time to gather stones together;
a time to embrace, and a time to refrain from embracing;
a time to seek, and a time to lose;
a time to keep, and a time to cast away;
a time to tear, and a time to sew;
a time to keep silence, and a time to speak;
a time to love, and a time to hate;
a time for war, and a time for peace.

There is a time and a season for  grief and hope, sorrow and joy, anger and serenity. One follows the other. They are all integrated. Parts of the same mortal experience. And the same sacred journey. Over and over. Again and again.

Just now,  it feels comforting that the sky seems to weep for the families whose pain we cannot ease. And later on, that the same universe will grow bright and laugh with us, because that time will come, too.

Every Prayer

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Every prayer is sacred and powerful, regardless of language and religion. Prayer also comes in many forms. So I have come to believe.

When our younger child Jessie was diagnosed and living with cancer, we learned to appreciate and welcome every form of prayer, positive intention, affirmation, meditative reflection, mantra, chant, song, or any other form of energy ever offered to us. Don’t all faiths and practices, in the end, have the same intention, at least when it comes to sending out cries for peace, hope and healing into our universe? For the sake of one child, or a generation of children?

When we were in the hospital, we wanted and needed every vibe and Amen that came our way. We hung up a cross, Buddhist prayer flags and a hand-made Native American dream catcher. We made a bowl that accumulated — as gifts from practitioners of many healing methodologies or faiths – angels of all sizes and shapes, a Buddhist prayer wheel, stones incised with words like love and believe, prayer cards from saints and sacred sites, crystals with different healing capabilities or properties, necklaces or bracelets strung with symbolic beads and prayer boxes. We received a quilt, blankets and shawl all stitched with more prayers and wishes. We listened to music ranging from vacation bible school songs to sounds of the earth itself, plus hymns, chants and mantras.

We cherished all of them, because they came to us from many parts of the country and the world. Carried home from other people’s travels. Some hand made. All tenderly packaged and delivered, when we were isolated in one small room, unable to go further than oncology unit’s hall or the garden downstairs.

Of course, sometimes people would make observations, sometimes in the guise of a prayer, with the best of intentions or from inside their faith tradition, that we didn’t agree with. Sentiments such as “this happened for a reason,” or God “wants another angel in heaven” or “you’re only given what you can handle.” The Creator in whom I believe doesn’t dole out diseases as punishment, to balance the scales, or to fulfill a predestined script. I understand that other families with different backgrounds found these statements to be comforting and consoling, and I wouldn’t ever negate or argue with those perceptions, where they provide support. Yet if we couldn’t bear to be told such things, we were explicit about asking people not to make certain statements; we established boundaries, when we needed them, even though we wanted every good wish and prayer.

Personally, I cannot imagine a Creator who deliberately creates illness, famine, war, disease, hunger, poverty and other conditions that hurt us. In my estimation, we connect with the Sacred when we find comfort and resources to endure or overcome these situations. Even when people offer strength and help to each other, we act in sacred ways. Maybe we find relief through a song that inspires us or a shower of 10,000 paper cranes. Perhaps acting through a doctor’s quick insight and action or a nurse’s gentle teaching. Playfully lifting us up through a counselor’s silly games or a playmate’s challenge to a feisty competition. Or in the tasty delivery of a homemade meal or steaming beverage. In many small and big ways, the Creator’s presence comes to us as compassion and healing.

Empathy and mending, grace and tenacity, laughter and honesty: these still come to us, in other ways, though that chapter of our lives is over. If you ever listen to my daughter Sarah sing Hallelujah, you will know that prayer continues to be part of our lives.

Yes, I believe in all prayers.

In times of urgency, we ask for help or rescue.

  • That’s often when we’re most likely to bother praying. We’re in need. In crisis. Seeking a miracle, even
  • When our need is extreme, sometimes it makes sense to be specific, and ask for exactly what you need. During cancer treatment, we used to ask for Jessie’s healthy blood counts, protection from infection, remission, and stability. Yes, we also asked for broader blessings, but they could be interpreted many ways: hope, courage, fortitude, healing. These days, we ask for continued emotional connection and healing within our family, and for grace and growth during new adventures.
  • You can imagine, even now, that I grapple with a gut-level reaction that specific prayers weren’t answered. I’m sure you have those feelings, too. Years ago, we requested Jessie’s survival. We have all had those moments, those specific requests we made, that didn’t turn out as we hoped. Over time, I have come to a reconciliation between what I asked for and what occurred. For instance, maybe the only possible resolution, the only form of peace and dignity that remained for my youngest child, was the one that came to her. Letting go and moving on to the next part of her journey, because it was … finally … time. And what kindness remained, in holding her here, in the conditions under which she lived?

When you pray as part of a regular routine …

  • … such as at bedtime every day, prayers can be like an entry in a diary. Or a one-sided conversation. Gentle. Sometimes formulaic. Reciprocal, though the other party is silent, but listening in. “Guess what happened today? Did you hear? I’m thinking of these people … be with them. Know what I’m planning next? Be with me as I take this step.”

At times, we experience Book of Job moments.

  • Like Job, I have cried out, “No! Why?!” Screams of rage or defiance, desolation or confusion. These primal screams are also forms of prayer. Communication with our Creator. Healthy ones, I think, because a real relationship can sustain moments of doubt and anger, fear and despair … these are how relationships grow. Even relationships with Yahweh.
  • After Jessie passed, I thought nothing more, nothing worse, could happen to our family. Yet there have been additional times when my loved ones have been vulnerable, hurt or compromised. All over again!
  • I have called out, at those times, demanding, “Couldn’t we just keep a loved one safe? Haven’t we been through enough?” No, it seems. We are all human and vulnerable, and life will continue, the world will keep spinning, and experiences will accumulate apace, not sparing us either the best or worst of existence, just because we feel time should stand still … give us a respite …. since we have endured so much already. Life isn’t like that. There’s not really a 10-minute intermission between acts. It just keeps going. Sigh.

Happily, we sometimes pray out of gratitude. Celebration. Hallelujah.

  • We pause and reflect, acknowledge a special experience or blessing.
  • Maybe we notice a silent, awesome, profound moment. We give thanks when we feel particularly moved or connected.
  • Or we honor  something special  — extraordinary — such as a milestone. Graduation, anniversary, promotion, birthday, or other landmarks.
  • Sometimes it comes in a moment of laughter and humor. When your perceptions shifts, and a situation strikes you as funny, and you regain balance and connection.
  • It’s a healing practice, to remember to say thank you. To count blessings. To name our gifts and their Source. With praise. Exultation.
  • Because the Creator is in these moments –  the quiet-wow-introspective-soulful ones, and the wild-happy-loud-rowdy-dancing-singing-clapping-hoorah ones — as surely as in the darkest ones.

Sometimes, we’re taught to turn over our situation to the Creator’s consideration, and say, “Thy will be done.” That has always been a tough lesson for me.

Really? Relinquish control, or my idea of what the best outcome would be?  As I’ve said before, and as Reverend Rebecca Pugh reminded us again on Sunday at church, sometimes the answer we receive to prayer isn’t the one we expected. It may surprise us. Alarm us. Challenge us. We may not even realize, until later, that we received an answer at all.

Of course, some folks don’t have a specific religious affiliation. And even if you believe in a divine force or Creator, you may not credit that Someone is listening or intervening on our behalf. That a divine Being is stirring up the pot of events in this world to change fate at the request — on behalf of — of fragile, finite human beings.

I have my own view, based on personal anecdotes and experiences, that causes me to believe that I am connected to a Creator who cares and actually interacts with us. But that’s me. I honor other viewpoints, too.

The cancer mom Jane Roper, who is new to this journey, is receiving many prayers, too. She is eloquent and honest, in this excerpt from her blog:

“… while I respect and appreciate the fact
that other people like to pray, I’m not really a pray-er myself.

Or maybe I am. I certainly engage in prayer-like activities sometimes.
I will silently ask for strength or courage or patience or peace,
either for myself or for others. Last weekend when we found out Clio was sick,
I did a whole lot of desperate, tearful praying
that she’d be OK, and that we wouldn’t lose her.

But I’m not entirely sure who I’m addressing in these prayers.
I don’t believe in “God” in the classic, personified sense
so much as I believe in a sort of force / energy that connects us all,
and is maybe somehow responsible for the incredible
and beautiful creation that is our world (dude).

… But I do believe that people’s
thoughts / prayers / vibes / whatever
can have a positive effect on how
we handle adversity and experience joy.

I mean, I think I do. I’m not sure.

… So. Is it weird that I like other people’s prayers
even though I’m skeptical of my own?”

People are moved to pray at certain times. Even if you’re not sure. If you have doubts. Or you don’t believe in it, not really. Motivated by joy. Or desperation.

As I have said before, I find comfort and personal growth in the habit of prayer. Yet I’m not rigorous about the form that prayer takes for me. I grab hold of opportunities as they present themselves. There’s Sunday prayer in church as a community. There’s meditation in my yoga class in the morning. There’s picking herbs at Appleton. Sipping a hot drink. Paddling in a kayak. Listening to my daughter. Touching my husband. Walking through sunlight and shadow. Playing with a dog. Writing in a journal. Serving others. Singing. Sitting still, noticing the world.

Prayer can be individual or communal. Silent or aloud. Action or words. Directed toward the deity of a specific faith, or simply to the sacred universe. And throughout our lives, we will learn new ways to pray.

Prayer is a tool. A practice. An opportunity. However and whenever you do it, it’s a chance to connect and communicate with something bigger than yourself.

Every syllable, every thought, every vision, every hope, every wish, every intention … it all has potency. And when it is directed toward goodness and healing, wellbeing and peacemaking, stability and humor … when it is aimed at building connections … then such prayers, regardless of origin, must be working for the same cause. So I hope. So I believe.

Namaste.

Pick Your Own

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I promised myself I’d learn how to recognize and cook one new vegetable every year. See a lean coarse stalk, a leafy feathery head, or rotund soil-crusted root, and know it for what it is. Recognize it as beautiful and tasty, once it’s been scrubbed and chopped, or the outer layer peeled back to reveal its tender interior. The work of a sharp paring knife, and a sense of each plant’s purpose, reveals that each vegetable has its own sweet taste, sharp bite, or clean verdant flavor. And plenty of goodness and nutrition to impart to us.

Why do I care? Me? ‘Cause I’m not a gourmet cook. And I’m a most reluctant gardener. (In fact, I don’t garden. I just don’t.)

Gail with dill from the pick your own part of the Appleton Farms CSA fields

I care, because we have a share at Appleton Farms, the Trustees of Reservations’ CSA (Community Supported Agriculture). It’s also the oldest continuously operated farm in the United States. And it’s a model for sustainable agriculture. Hundreds of families have shares, and receive the bounty of the fields from June into October, with access to a winter supply of vegetables before the end of the year. Plus there’s a dairy store and a small selection of meat (which may appall some readers, but it’s part of this farming model) and access to other locally-made produce, such as honey or bread!

Much of the CSA share is planted, cultivated, and harvested by staff, interns and volunteers on the farm. We don’t have to go out and put seeds in the earth, turn the soil, pull weeds, water row upon row of plants, or participate in the other labor included in bringing a single plant to leaf and table. Instead, shareholders enter the cool interior of the lofty barn, and fill a single large bag with produce already plucked from the earth. We walk among wooden bins overflowing with leafy cabbage and lettuce, chard and carrots, beets and turnips.

So my goal to learn new vegetables and make a meal of them? So far, so good. Well, I learned to identify kohlrabi, which is in the broccoli family according to my friend Meryl, with its bulbous root and leafy stalks; it is good diced small into coleslaw or salad, for instance. A few years ago, I learned to appreciate dark green kale, whether its chopped and massaged into a tasty salad or simmered with sausage in a Portuguese kale soup recipe. I’ve made pesto and fresh salads from the farm’s selection of basil and tomatoes (tomatoes aren’t ready yet, fyi).

Another part of the experience is picking. We wear boots and hats, sunscreen and probably insect repellent, then go out into the fields with scissors and bag, to pick whatever has grown ripe. We come back with snow peas and basil, oregano and snap peas right now. Many herbs, actually.

Again, do I really know what I’m doing? No. But I’ve learned.

Sigh. Or remembered back, to childhood when our family depended on the produce from a large home garden to supplement the meal on the table. My mother, who worked fulltime, nevertheless became adept at canning, freezing and storing produce in ways that it would last through the winter months when our family income was stretched too thin to heat a large drafty house and buy enough food for a family of six, too. As a child, contribution to the garden? Weed. Pick. Shell. Knock beetles and other unwanted infestations, critters that vied for the same green leaves and juicy crop we needed, off the leaves.

Back then it was a burden. A task. A necessity.

Miri gathering herbs at Appleton

Now I go out into the field, often with a friend, and choose which rows I’ll walk down. Bend over and search among the pale green vines, coated in dry earth, for promising sugar snap peas that aren’t too fat or leathery. Snip tassels of dill, bouquets of chive and mint. Visit the flower garden, and bring home a few lacy heads of yarrow, a flower whose name I didn’t know until this week.

Usually, just like waking up for 5am yoga, I debate with myself about the merits of getting out to the farm for PYO (pick your own) moments. I’d be happy enough to take just the share already picked for me, and miss out on the other juicy and floral opportunities. Wouldn’t I?

Okay, okay, I know there’s benefit to the pick your own crops. I’d be disappointed not to enjoy them. Or not to make the effort to partake in that part of the CSA.

So I put away the bag of vegetables already neatly harvested for me, and head out to the fields. Once I’m out among the knee-high rows of early summer crops, kneeling down, sometime alone and sometimes chatting companionably with other shareholders, adults and children, it’s a form of healing and meditation. Something loosens up and gives way.

Out in the fields, amazingly, I grow relaxed. Feel connected.

The presence of the natural world and the character of cultivated land surrounds me. I hear a chorus of birds, some startled out of hiding in tall stalks a few rows away, warbling or crying. Catch the furtive rush of small mammals who share the fields with us. Brush away the drone of a curious insect. Hear a tractor in the distance. Smell the up-close pungency of manure from the dairy pastures.

Pluck. Snap. Snip.

I’m learning to know these shapes and scents, these green and colorful plants, by their leggy vine or bushy shape, their pale flowers and crisp fruition. I have plans for what I’ll make with them. Some fresh. Some baked or stored for later in the year.

Yarrow from the flower garden at Appleton Farm’s CSA

And when I leave the fields? I feel beautiful myself, outside and inside. Like the cultivated crop I am coming to know, one name and recipe at a time, I may be a little dusty and droopy on the exterior, until scrubbed and freshened up. Once peeled back a bit, and bared to the light? Inside of me there is a hard nub of persistence and life, something too tough, bitter or stubborn to bite and swallow, but also a crisp or soft part that is tender, flavorful, nourishing. Some part of myself that’s willing to give way and be made into something new.

In its way, spending an hour or so in the fields at Appleton is a form of prayer. A letting go. Connecting with self and something greater.

My bag is filled with the bounty I’ve chosen or picked. With the promise of meals to come, experiences to share with family and friends as we savor these flavors and times together. And my heart is at ease, reminded of a part of life that it’s easy to miss, either because we don’t have a reason to go into the fields, or we just barter away the chance by shrugging our shoulders and saying it doesn’t matter, really, does it?

It matters. It does. That’s one more thing I’ve come to recognize – and name, for myself anyway — in the shadows of the barn and the broad, green expanse of the CSA fields.

Choose Your Ground

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For many reasons, my friend Rebecca Gibbs is on my mind today. In part, because her daughter Anna wrote a beautiful poem about our family, which I hope to share in the future, with her permission. Perhaps because her husband has been working in our neighborhood, overseeing a town project. Also since I have a stack of books borrowed from Rebecca’s library — stories we had discussed — and some that I just finished reading, so that it felt as if our conversation has continued over the past several months. And maybe because her mother is a good friend who also attended graduate school, and is encouraging me on this adventure. And as I plan for classes in the fall, I’m encouraged because Rebecca attended Harvard University; that was one of the stories I was privileged to capture on videotape one sunny afternoon, as she made recordings for her family, about a year before she died.

Of course, she’s in my heart, because she and Jessie shared the journey through cancer, and trips down to Dana Farber. Rebecca G. and I understood each other in a unique way … she was a mother who faced the knowledge that she would leave her children before she was prepared to do so, and I was a mother who had lost one of my children much too early.

Her presence in my thoughts was a sharp contrast with the scripture I heard in the Meetinghouse today. The story tells of two miraculous healings.

In the Biblical text from my faith tradition (Mark 5:21-41), Christ was asked by a father named Jairus to come heal his dying 12-year-old daughter. Crowds followed him. On the way, a woman, who had been isolated and gravely ill, worked her way through the crowds and touched his robe. Christ felt energy go out of him, and knew someone had been healed. After he spoke with the woman, and listened to her story, friends of Jairus rushed up to say that Jairus’ daughter had died. Yet Christ promised that the child was merely sleeping, not dead. He continued to Jairus’ house and … “42 He took the twelve-year-old girl by the hand and said, “Talitha, koum!”[d] which means, “Little girl, get up!” The girl got right up and started walking around.”

Admittedly, I felt angry when I heard that scripture. Bothered. Maybe just momentarily, but honestly, it’s always there, at some level. Where was that promise, where were those words, in my family’s journey through cancer? Or Rebecca Gibbs’ journey? Why are some healed in their bodies, and not others?

Wasn’t there a “Talitha, koum!”for our child, too? And others young daughters and sons? Or adults, because we are all someone’s children?

I don’t often allow these thoughts to have much room to wander around and be expressed. They’re futile. They’re raw. They aren’t tempered by everything else I know and believe. They grow out of the fundamental outrage and sorrow that is always, even a little bit, part of our consideration of Jessie’s life and death. I wouldn’t be honest, with myself, or anyone else, or my Creator, if I didn’t say so.

I wish, and I know others have wished also, that “Talitha, koum!”had been our promise. Our story. That we could be witnesses to bodily healing through faith.

And yet as one wise woman of faith, Sister Leonore, has reminded us more than once, Your prayers may be answered, but not always in the way you expect. Perhaps “Talitha, koum!” is different for some of us.

The Meetinghouse, restored over the past several years by members of First Church’s congregation. Now in use again, decades after a fire caused its closing.

Certainly that was the challenge that Rev. Rebecca Pugh faced today, as she grappled with that scripture with us. We met today in the small Meetinghouse, a freestanding structure near our larger church, which has undergone its own journey of healing, because it was badly burned decades ago. It has slowly returned to usefulness through years of thoughtful restoration at the hands of many congregation members, so that it is available again to be used for summer worship.

In that freshly-healed room, small enough for a modest summer congregation to gather, Rebecca Pugh looked at the closely-clustered group of friends and members as she talked about the scripture, and those miraculous healings of Christ. She was careful with this topic, because she recognized that it was sensitive.

You see, I’m not alone, wondering why such healing miracles didn’t happen for each of us? I sat in a room filled with people who understand, quite intimately, what it means to live with broken bodies or lives.

Linda listened from her wheelchair; she was paralyzed ten years ago in the same automotive accident that took her husband’s life, and changed hers forever. Nearby sat a young visitor who is deaf. Others in that gathering attend regularly, and serve in leadership roles, yet live with chronic conditions that range from cancer to immunosuppressive conditions. Scattered among us sit those who have overcome eating disorders or reclaimed sobriety, yet will always struggle with these challenges. Of course, some among us are otherwise psychologically or emotionally wounded, too.

Don’t all of us wish we’d felt the rush of restorative power upon touching a Healer’s robe, or heard “Talitha, koum!”as a child rose up from the brink of death? Instead, many of us live inside slightly imperfect or very compromised bodies, or function despite deep connection to other losses and traumas.

We try to find comfort in what Rev. Rebecca Pugh identified as spiritual healing. Because we don’t all receive miracles, do we? At least not in a form we immediately recognize. Although maybe, when we reframe the story, and look at it differently, there’s a miracle anyway.

As Rebecca Pugh pointed out, our experiences are sometimes like the scriptural account of the woman who pushed through the crowds to touch Christ’s robe. We may rely on the courage of connection to this community and our Creator, and the resources that those give to us, seeking whatever hope could be gained there.

As you look around, you don’t have to read the Bible to see such examples. Sitting in that old-new Meetinghouse, its fire-ravaged scars still part of our history, its structure shored up and reclaimed to be purposeful again, we could see the same lessons visible in each others’ lives. Around us are living mentors, teachers, and inspirations. We are privileged to know people who wake up each day, inside bodies that don’t do what they were designed to do, and yet find a way to reach past those limitations to be part of something bigger, something more, and find meaning in lives that are blessed in other ways, if not by physical fitness and health.

Yes, I wish we’d received healing miracles. But we didn’t. Not that obvious kind, anyway.

Like the people in my congregation, Rebecca Gibbs was more than my friend. She was also, I realize, my guide and teacher.

She thought past her own cancer, which was progressing, transforming and diminishing the length of her life. She considered how to heal her family, too, even after she was gone.

One way that she tackled the transition from her presence in her family’s life, to her eventual departure, was to invite her family up to the Highland-Cowles cemetery. As I remember this story, which she told to me, though I recall it imperfectly and secondhandedly, she had an outing with her spouse and two children. Up under the same row of maples where Jessie’s ashes are now interred, she spent time with them, admiring the view, the trees, the setting, talking about why she liked that spot.

She created a living link to that spot, where her remains were later buried. In that way, her family had her own words, her own feelings, and her living presence imprinted there, as part of their connection to the site they had selected. She hoped they would go up there, and when they visited later, be comforted by that first visit with her.

Rebecca Gibbs chose her own ground: soft green blades of grass and occasional upheavals of knotted tree roots, sheltered by an arching canopy of verdant whispering leaves and a chorus of singing birds. She stood there, above her own eventual passage, and claimed it. Made it part of her living narrative, to give as a gift to her husband and children.

Rebecca G. and I also found it comforting that Jessie and she would be close to each other. Near each other, between the stately the row of maples, overlooking the town. Rebecca believed they’d be near each other, both here on earth, and wherever they next sojourned.

Part of me will always ache at the words in the scriptural account that cried, “Talitha, koum!”Because the way my younger daughter “got up” was to leave this life, and move on to another place where I cannot yet follow.

And yet, I also know, and assure you, that there are many more layers to our response to Jessie’s life and passage. I believe that part of the answer to our cry for healing, our prayer, was the way that she and my friend Rebecca G. each lived beyond the limits of cancer, and made us pay attention, and realize that we can make a difference regardless of how short or long we live, how small or large our ways of reaching out to others.

And the same is true of those people I witnessed in the little white Meetinghouse today, listening to the anecdote of miraculous physical recovery, when some of us won’t ever have that experience in this lifetime. All around me, people continue to live boldly and brightly, or quietly but visibly.

Whether each of us intends it or not, we become mentors for each other. Examples about how to make purpose out of unfathomable circumstances, how to find grace and hope when all seems impossible, how to keep going when it seems there are too many obstacles, how to hold on or let go, how to be part of this community, this experience, this life together.

I also realize that the promise of healing – physical or spiritual — doesn’t mean you won’t hurt anymore. Or carry scars. Or continue to struggle with old habits and relapses and cravings. Or have times when you fall into dark places, and come out again.

The promise of healing is there in the faces gathered to listen to the stories in Mark. It’s visible in the lesson of people who show up and claim their chance at healing and connection. It’s about trying. Continuing. Being present. As much as possible. In whatever way is meaningful and practical.

Each of us, in our different ways, claims our ground. Creates living stories that will later become memories, and heals self and others – at least emotionally and spiritually, if not bodily, as much as possible – here and now. Again and again. Maybe on velvety green spot beneath towering maples. Or inside the reclaimed walls of the Meetinghouse. Or somewhere else along the way, on our different journeys.

Breathe In, Breathe Out

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Yesterday, after a 5am yoga session filled with focus, music and stretching, and then after hauling 12 more large bags filled with donated items out to the curb for pickup by the Epilepsy Foundation truck, tossing a few containers into the dumpster, and then moving other boxes of “keeper” items (like photo albums) out of the three rooms that are being emptied and prepped for a rental apartment, I was still dressed in my yoga gear, sweaty and rushed, as I printed out a paper I had promised to prepare.

Not surprisingly, I arrived late at the door to the church, but found it locked. Oops. Was I so late that I’d missed my meeting? I called Rebecca, who was on the same frenetic schedule as me, though for other reasons.

Thankfully, I have yoga instructions running through my head, clearing away some of the noise and tension. My friend Miri invited me to resume 5am kundalini yoga every day with her. Before the sun rises, we participate in a morning spiritual and physical ritual — a sadhana — to prepare ourselves for each day. It’s taught by Ingrid. Showing up every morning, even when I want to stay in bed, comfortably sprawled under the blankets, is possibly the wisest decision I make each day.

Breathe in, breathe out, let it go.

There I was, catching my breath at a locked door. Standing outside the church. Late. Distracted.

A few minutes later, Rebecca and I connected. She’s advising me as I start another part of the process that parallels my entry into graduate school. Along with seeking a Masters degree, I am also starting the path to request being taken “in care” by my home church and the governing area conference as I work toward ordination through the UCC (United Church of Christ, the protestant denomination to which I have belonged for almost 20 years).

Rebecca and I sat in her office and reviewed a paper I had drafted. Discussed next steps.

Then went into the sanctuary to pray. Yet my brain and heart were filled with noise. It all seems so surreal. And I have good reasons to be concerned. Plenty of obstacles that can easily clutter up my mind, and distract me.

Breathe in, breathe out, let it go.

The whirl of worry goes something like this. Returning to college … graduate school … earning a degree as I turn 50 years old. Pursuing a shift in vocations, when we’re stressed out about how to pay for college at all, since both Sarah and I will be enrolled at the same time, and changes to family income are alarming. Juggling part-time work and full-time classes. Learning a new language. Entering an academic community among many younger students … I’m actually the age of faculty as opposed to many of my incoming peers. Parenting Sarah from a distance, as she heads out to college and adulthood at the end of the summer. Commuting to Boston and Cambridge, places that Chris and I lived almost two decades ago, and where I have only been a tourist more recently. Connecting with Chris this autumn in the midst of the rush and bustle of conflicting schedules, at a time when our lives might once have grown more simple, but will now be more complex instead, and as we approach a crossroads and need to pay attention to whom we are as a married couple without a child living at home. Surreal. All of it.

Breathe in, breathe out, let it go.

After clearing away the fuss and noise in my head, I connect with deeper awareness. Going back to school? Going in this new direction?

I feel as if someone has lit a fire inside me. My mind and heart start to open up with questions and ideas, or just the promise of them. I’ll study and learn from other people, coming from many faiths, traditions and nations, and come away with many new experiences and understandings. The next few years may help make sense of the past forty-odd ones. Integrate so many past experiences, and allow them to take on new meaning, as they inform what comes next. As I answer a call.

Breathe in, breathe out, let it go.

Right now, the process starts by signing the forms for college loans, making appointments with church committees, and figuring out how I’ll get back and forth to the city as efficiently as possible. By finishing this paper I’m working on with Rebecca.

Wait. Those actions are more logistics. Stuff. Details. Clutter.

Breathe in, breathe out, let it go.

I try again to return to the real motivation. This process also begins with the fire inside. With the hope and light that kindles when I imagine myself in Cambridge on campus.

And with the grins and nods that I see reflected in my family and friends when I tell them what I’m doing. Or as Chris says, for anyone who knows me, this seems obvious. “Well, yeah! D’uh.”

So why didn’t I realize and say yes to this idea sooner? Why am I surprised by what everyone else already seems to see as a path that is open in front of me? Sometimes I have to be hit over the head by life, I guess.

Breathe in, breathe out, let it go.

More immediately, this process starts with the prayer in the sanctuary, yesterday morning. I had dust and dirt under my fingernails from cleaning and hauling. I was in a t-shirt tossed over a sports bra and black yoga pants, hoping I was only mildly stinky from perspiring as I worked in the house. And my brain was already galloping down the road, thinking about how to edit the paper, and the research I wanted to do, hunting for a specific hymn from Taize that I used to sing as a teen, and …

Breathe in, breathe out, let it go.

I barely focused enough to stay present in the sanctuary with Rebecca. I filled quiet moments with chatter. Giggled. Giggled?! Me? Like a skittish adolescent girl!

Breathe in, breathe out, let it go

Then we walked to the front of the sanctuary. Lit candles. Opened the hymnal. And I tried to be focused. To pay attention to a moment that is meant to bless this journey I’m taking. To honor this time that Rebecca had set aside for the two of us.  To invoke the presence of the Creator.

Yet I couldn’t be calm and present inside that moment. I kept slipping away.

Breathe in, breathe out, let it go.

Know what? I realized I didn’t have to be anyone else. Or be anywhere else. I could be exactly who I was at that moment. Right there. Because wherever I went, the One to whom I prayed would be with me. And see me as I really am. As giddy and unprepared and overwhelmed and excited and informal and sad and worried and hopeful as I was right then.

So here’s the prayer I managed to squeeze out, while Rebecca – my minister, mentor and friend – held my hands in the silence of First Church’s sanctuary. I’m paraphrasing, but it was something like, “God? Here I am. Sweaty from work, distracted by so many things, imperfect, but coming to you like this, as I am. Please be with me. Help me be present and go where this journey takes me. Thank you.”

And as it turns out, I’d been praying all along. All morning. All week. Over and over, as I inhaled and exhaled, and whispered chants from the morning’s kundalini routine.

Because the yoga every morning? The daily ritual? “What is sadhana? It’s a committed prayer,” says the first teacher of kundalini yoga, Yogi Bhajan.

Breathe in, breathe out, let it go.