Tag Archives: time

Time: Then and Now

Standard

I recently teased my friend’s daughter, almost outraging her, about freezing time so that she can’t grow older than 14 years. She is reaching for everything that comes after this year. High school. Summer jobs. Learner’s permit. Driver’s license. Voting. Graduation. And everything beyond that.

This young lady is the same age that my youngest child Jessie would be, if she’d continued to grow up.

Isn’t it provocative, to consider what you’d do if you could slow, stop or reverse time? It’s certainly been the subject of many stirring and playful plots by authors and screenwriters over the centuries. It could be a thriller or a life lesson, depending on whether you’re Steven Spielberg, Frank Capra, Audrey Niffenegger or H.G. Wells.

Time. Stopping it. Letting it flow.

At some points in life, we’re in such a rush. We want what comes next. Just like 14-year-olds. As children or teens, we’re looking ahead. Counting down. Or counting up, depending on your point of view. Striving toward the goal of being a grownup. Yearning for what seems so enticing.

Yet ask almost any recent high school grad. Wouldn’t they sometimes prefer to relinquish the pressures and responsibilities piling up on top of them, and just be a kid again? With only a child’s concerns? They’re staring adulthood in the face, feeling it shifting their frame of reference, altering their sense of the value of free time and work time, play and respite, labor and effort, privacy and intimacy and friendship and social liberty versus  commitments to college, jobs, loans, housing, relationships and many other binding connections.

A recent graduate might actually wish to stop the hands on the clock. Or spin them backward, to return to what seemed like simpler times.

If you look backward or forward with too much idealism, it’s basically a “grass is always greener” viewpoint. Every moment, past or future, is layered and complex and special and compromised.

In other instances, we’re wise enough or foolish enough, or at just the right cognitive developmental stage (babies, for instance) to loll around in the moment. Bask in it. Splash in it. Submerge ourselves inside it. Be present, here and now.

So recently, I was tugged into my own past during a lively reminiscence with this same 14-year-old girl about our favorite Disney television comedies. Hannah Montana, to be specific.

I found out, much to my shock, that the television series continued beyond the years I’d watched it. Why was I surprised? But I was. I’d missed some seasons, because we don’t have expanded cable access at home. And I don’t have a reason to watch it anymore.

So where did I originally watch this Disney series? When I spent endless hours at Childrens Hospital with Jessie. That was a surreal slice of life, living inside a climate-controlled atmosphere, unable to feel the touch of wind or sun most of time, shut inside an environment with its own rhythms and traditions and language, unlike anywhere else in the world: time lifted out of any other reality, stretching out from hours and days into months and years.

We spent time meaningfully. We conducted plenty of school work and tutoring, reading and writing. Creative projects with fabric and glue and paper and paints and clay and scissors and every sort of craft material you can imagine. Imaginative therapy with music and play and art and talking and role-playing.

But we also spent recreational time playing competitive video games, board games, reading books or watching hours of movie and television, when Jessie felt especially yucky.

Do I miss living in the hospital? No. Do I wish I could snuggle up next to Jessie in bed, watching her favorite Disney shows … yes.

Though the reality of Jessie’s mortality was always palpable, we couldn’t imagine a time we wouldn’t be able to feel her curl up close, still fitting into our laps at age 9, thin and graceful, long and prickly, moody and sweet. It’s impossible to imagine that you won’t be able to touch, protect, play, argue with and console your child. It’s impossible to imagine the emptiness where arms once encircle, or a weight that won’t press against you any more, or a breath, or a voice, or a giggle, or a brush of her fingers.

We’ll say good-bye again again, in a healthy, natural way when Sarah goes to college in the fall.

But a child’s passing? His or her permanent departure? You can’t imagine that will eventually feel like.

Yet the shadow of it  made us pay attention to the time we had with her, and each other, in the moment. In a sense, it focused us. Acted as a lens, and changed how we viewed and measure time. We tried not to take any of it for granted.

Afterward, time changes again. You must grow familiar with her absence hour by hour, day by day, month by month, year by year. Now we measure time, in part, by what came before. And after. For instance, as my conversation with a 14-year-old revealed, there are  years punctuated by High School Musical and Hannah Montana. And years without.

Some children will achieve those milestones that my friend’s 14-year-old yearns to reach. Others will never get there.

Yesterday during the PMC, I watched the results of time’s progression: its blessings and its losses. Survivors posed for a “Living Proof” photo, and many of them were once toddlers or elementary school students on treatment for cancer. Now they’re teens and young adults riding to support cancer research. Like Sarah, many members of those families grow up to study medicine of some kind. I also sought out and hugged sweaty panting adults riding in memory of their children. Others, whom I don’t know, rode for siblings, spouses, or parents.

Then there’s Hannah Montana-time. I realize that some parents don’t approve of the Disney channel. Or Hannah Montana. Mostly on principle. It represents some frothy, silly values that don’t gibe with feminism, for instance. It’s sort of like letting little kids play with Barbies. It demeans, in a way, a more intellectual and wholesome value system. There’s merit, of course, to that position.

Yet it doesn’t make me feel guilty or apologetic for enjoying Hannah Montana with Jessie.  I have written before about the importance of letting children feel like princesses. Role-playing. Therapeutic play. Externalizing experiences and developing scripts and games and roles around it. The potency of magical thinking and the power of fantasy, dreaming and escaping. (Aside: Hannah Montana was a big hit for little girls of Jessie’s age, in part because they could imagine themselves living a double life as “regular kid” and a “superstar.” The possibility of being either ordinary or fairy-tale … or both at once. And in Jessie’s case, perhaps her wishfulness extended to being healthy, as well as all tossing around all those long blonde tresses and rocking those great wigs and outfits.)

So yes, I appreciate the value of my Hannah Montana-years. But I don’t think I’d turn back time. Nor would I fast-forward it.

Here? Right now? A whole lot of life is happening in our family. Sarah’s last month at home before college. My final few weeks before graduate school. The start of a new season and transformation in our family’s life.

The same is true in most families, for a variety of reasons. Summer versus autumn. Vacation and camps versus school, sports, extracurriculars and work. We’re all in the height of this time of year, but it will come to a close soon enough. We’ll all be in the middle of transitions, and the stress that comes with them.

For now, I’ll just savor right where I am. Sure, maybe I’ll sneak in a new episode of Hannah Montana, in honor of Jessie and childhood and the silly ways we escape difficult realities, and the magic of both childhood and a rich adult fantasy life. (Trust me, hours upon hours of Disney channel didn’t steal Jessie’s ability to use her imagination … or mine.) But mostly I’ll try not to tune out; I’ll pay attention to the experience of my living daughter Sarah, who is letting go of childhood and grabbing onto adulthood, even as I write this journal.

A Time for Every Matter Under Heaven

Standard

On a grey and misty day, when the sky is overcast, and I have heard sorrowful news from many places, about the return of cancer in a grown man’s body as well as a little child’s belly, why do I feel like crying?

Today, it seems as if even the sky weeps. It comes down, not salty or briny, but as fresh water, pattering gently, renewing the earth.

Don’t you sometimes feel as if the world recognizes your emotions? On a bright windy day, in kite-soaring weather, you might think the earth’s spirits are as feisty as your own wheeling, enthusiastic thoughts. Then at a solemn time like this, it seems as if the earth mourns along with families who are in pain. On occasion, our world echoes back, gently, tenderly, but on a greater scale, our human-sized grief.

After all, this fall of rain is the letting go of pent-up pressure. It is the release of something that was carried great distances, transformed and contained, until it grew too heavy to bear any longer.

Oh, rain. Fall. Fall. Weep, when I can’t. When I don’t have a particular reason to do so, except that I empathize with the news that comes today.

Mind you, no one asked me to worry about a distant family’s  pain or grief. But I do. I care. It happens, I suppose, because humans are wired to have emotional connection with each other.

So today’s journal is a meditation on the news I heard from other cancer families, as well as what I have witnessed as a companion of friends in hospice and reflections from inside our own family’s journey through twice-relapsed leukemia, transplant and its aftermath.

Right now there’s an ache that seems as big as the sky’s sorrow, to know there’s pain inside these families. A different sort of pain than first learning about a dangerous diagnosis. A pain more final than wrapping your head around the threat of disease, then lifting a chin and taking a deep breath, planting your feet and looking fate in the eye, and saying, “We can get through this. There are answers. There is something to be done. We have hope.”

It’s an altogether different reality, when the experts tell you, “There’s nothing more we can do.” And that’s the news that different families received recently.

For the family who hears these words, there comes a new squaring-off with time, fate and faith. When you hear such irretrievable pronouncements, you may …

  • Want to stay right where you are, put your hands over your ears; pretend you didn’t hear, you don’t know, you cannot see. Hope that if you just wait in one place a while longer, ignore it, deny it, then this bad news won’t be happening.
  • Then argue, and say you’re going to find an answer, even if you have to go somewhere else, ask someone else, do something more experimental and unconventional, because this cannot possibly be all there is.
  • Pray. Beg. Barter. Beseech the Creator for a miracle. Or peace. Whatever is possible.
  • Eventually hold on tighter to each other, try to fill silence with everything that needs to be said, begin to check off the best and brightest experiences on your loved one’s wish list, because the calendar isn’t on your side anymore.

For a while, perhaps you think it can’t be happening. It’s not possible.

Then at some point, there’s another transition. A realization. It’s happening. Oh, Lord, this is real.

Relapse? Recurrence beyond known forms of treatment, or beyond any useful medical response at all? It’s not fair. It’s not just. It’s not logical. It’s not … it’s not anything you can easily reconcile or understand. Not at any age, but especially not a father and husband who should justifiably expect decades ahead of him, or a little child who may never attend kindergarten.

But it happens, all the same. For many families, the result of treatment after diagnosis is ultimately hope, survival, and recovery. For others, there is this other other outcome.

I feel … just a little … like I understand families who must keep vigil, make the most of their living time together and perhaps … probably … although we always hold out hope for miracles … find ways to say good-bye. Please know that I recognize that every individual and family’s journey is different. And the outcome isn’t pre-ordained, though science may say it’s predictable.

Because I can tell you more than one story … from our own years on treatment with Jessie … about children who survived, inexplicably, with amazing outcomes, after every scan and test and medical opinion said it wasn’t likely, or even possible. So it’s okay to keep holding out, at least in some quiet part of you, or maybe in the biggest, loudest part of you, for the miracle.

Meanwhile, it may be healthy to immerse yourself in this place where you are. This time … of being together in the face of farewell.

Such experiences can be profound. Meaningful. A blessing in their own way, though very difficult and wrenching. (Or something else entirely.) It depends, largely, on the family’s response, and the support of their caregivers and community.

As a family continues on this journey, they do so in the way that seems best to them. Together they think about … and feel their way toward  …  how to be together in the time that is given to them.

No one, bearing witness from the outside, can say what is right for someone else. We cannot step into the path, and avert a difficult journey. Change what will happen. Only the family, the patient and their loved ones, sometimes with guidance, can choose their direction, do their best with what resources they have, and go wherever this path leads them.

Meanwhile, their medical caregivers? The ones who say there isn’t anything left to do? Likely they have tried everything. And despite this insight, some specialists continue to try to prolong life. Caught up in such extreme measures and momentum, medical caregivers … and sometimes guardians and patients themselves … may seek intervention. (Which could be a viable choice, but might also be more damaging. Such decisions are best approached with much consideration, since you can’t be sure of the results, or the cost to the patient’s wellbeing.)

In the optimal scenario, part of a family’s caregiving team is thinking about different values and assessing the whole situation from an alternate perspective. This person may take the opportunity to pause events. Often we need a trusted individual, hopefully a professional who is trained and ready to handle this form of advocacy, to take on that role. Perhaps this is someone neutral, from outside the family: a trusted mentor, counselor or medical practitioner. Who can credibly say, “Wait. There are other consideration here. Comfort. Dignity. Your belief system. Let’s balance the invasiveness of more treatment, more heroic measures, with measures that will preserve quality of time.”

The healing a family may seek, at such times, is not always recovery from the diagnosis. Not anymore. Instead you wish for a dignified and peaceful letting go, that involves family and friends, and makes the most of the time that remains.

Yet even the experience of being together, and letting go, can offer a form of healing. Solace. Peace.

In the case of families treated for cancer at Childrens Hospital Boston and Dana Farber, this journey is often guided by PACT, its Palliative Care Team. For many others, it also includes hospice professionals. When such a practice is integrated into the process, it provides immeasurable resources and comfort for families.

After all, in the face of such relapses, your concept of time changes. Your focus shifts. With additional support, the energy of the family can be aimed at the most important issues: emotional and psychological interactions with each other. Other bodily concerns can be managed by a team of people who are experienced in this area. Sensitive changes in moods, emotional state or mental outlook may also be tended to, by caregivers knowledgeable about what’s happening inside the patient and family’s hearts and minds.

Just for today? So soon after families have first heard and shared this news, and their friends are just trying to let it sink in? Perhaps they aren’t yet ready for all of those concerns and negotiations, those steps and decisions.

Sometimes, it’s too soon to cry. So you let the sky weep for you. Until your own tears come.

Finally, there’s this other truth. Believe it or not, the weather will change. The sun will flicker into view, grow hot and bright again. And even in this part of a family’s journey together, when people are probably starting to understand that they may say good-bye to each other, a person may want to stand in the light, turn her face to the sky, and laugh as loudly as possible. Cast a long purple shadow across the earth. He may wish to listen as the world echoes back his presence, while he has breath to move and shape the air, to fill the wind with the sound of a human voice, human joy.

This isn’t new wisdom, although I have learned it firsthand, over time, too. It is written in many sacred texts.

Ecclesiastes 3: 1-8

3 For everything there is a season, and a time for every matter under heaven:

a time to be born, and a time to die;
a time to plant, and a time to pluck up what is planted;
a time to kill, and a time to heal;
a time to break down, and a time to build up;
a time to weep, and a time to laugh;
a time to mourn, and a time to dance;
a time to cast away stones, and a time to gather stones together;
a time to embrace, and a time to refrain from embracing;
a time to seek, and a time to lose;
a time to keep, and a time to cast away;
a time to tear, and a time to sew;
a time to keep silence, and a time to speak;
a time to love, and a time to hate;
a time for war, and a time for peace.

There is a time and a season for  grief and hope, sorrow and joy, anger and serenity. One follows the other. They are all integrated. Parts of the same mortal experience. And the same sacred journey. Over and over. Again and again.

Just now,  it feels comforting that the sky seems to weep for the families whose pain we cannot ease. And later on, that the same universe will grow bright and laugh with us, because that time will come, too.

Kay Ryan’s Glittering Fan of Time

Standard

This week has been all about catching up. With the house. With myself.

As anyone following this journal knows, the past several weeks were a major push toward a series of events: graduation, end-of-school activities, out-of-state guests, construction inside the house, and the Coast of Hope bike ride. In her poem The Edges of Time, the US Poet Laureate Kay Ryan called those sorts of demands:

“A glittering fan of things
competing to happen”

While Chris and Sarah are volunteering with the youth group at Staten Island, I’ve kept moving (for the most part). I attempt to clean up the house and yard (with help, by the way). Discard and recycle. Sort supplies. Donate perishable items. Put away inventory from this year’s bike ride, for use next year. Continue to organize stacks of family belongings inside the house, that must either be given away, stored or assigned to new location for daily use. Approach the ability to empty three rooms, so they’ll be liveable for our anticipated tenant in a few weeks. Again, from Kay Ryan’s poem The Edges of Time, I’m responding to what she calls:

“A humming begins,
apparently coming
from stacks of
put-off things or
just in back. A
racket of claims”

Along the way, it’s also an opportunity to take stock of myself, too, personally.

I’ve spent time with my counselor, exploring the highs and lows of this week. Talking about relationships with Chris and Sarah. Discussing grief for Jess. Assessing self-image and new vocational directions.

Working with a counselor that I trust is an imperative form of self-care. Originally I didn’t use this resource for the first few years after our life with cancer abruptly ended. Our entire family has learned to value therapeutic relationships, although we aren’t all consistent about maintaining them.

Of course, I also indulged in a little girls-week-at-home stay-cation behavior (pizza, movies, pajamas). Visited with friends. Been alone a lot. Written. Read. Walked. Thought.

And I returned to work. I’m tackling assignments for clients. Drumming up new freelance projects: website design and business writing. Preparing for graduate school.

Phew. The last few months’ adrenalin-rush of time, leading up to all those events, was exciting and focused in its way. Like proceeding, always, at a full gallop.

Now I’m grateful for the chance to slow down, though I keep moving. Taking inventory. Getting back in touch with fundamental conditions: how the family is doing, how the house is changing, and my own state of being.

As I write, I realize that the week is slipping away. That this gift of time, this chance to pay attention and catch up, is unwinding. My family returns on Saturday. Life takes on more complex rhythms. The bubble of time in isolation, which I have begun to use to restore some internal and external order and to reflect, is coming to a close.

I’ll share Poet Laureate of the United States, Kay Ryan’s reflection on her poem The Edges of Time. “What got me thinking about the subject of time was my habit … of suddenly having to do all kinds of things just when it was time for us to walk out the door to go someplace. Carol would stand there, keys in hand … Couldn’t I have done it earlier? No! I was stirred to action by not having time, by time’s diminishment or thinning. … a poem that I can now easily read as a meditation on the approach of death  … was written to explain why I couldn’t get out the front door.” This reflection by the poet is excerpted from The Washington Post.

THE EDGES OF TIME
by Kay Ryan

It is at the edges
that time thins.
Time which had been
dense and viscous
as amber suspending
intentions like bees
unseizes them. A
humming begins,
apparently coming
from stacks of
put-off things or
just in back. A
racket of claims now,
as time flattens. A
glittering fan of things
competing to happen,
brilliant and urgent
as fish when seas
retreat.

What Is Sacred: Now

Standard

It’s possible to ignore the present. To let it slip away, unacknowledged. Suddenly part of the blur of racing time.

When you select pictures to capture an event you recently attended, you look backward. When you write up your timesheet (as freelancers like me often do) to create an invoice, you measure your productivity by looking into the past.

On the other hand, when you imagine your daughter striding across the stage in cap and gown to accept her graduation diploma in 2 weeks, you wander with mind and heart into the future. Or when you’re anticipating a work deadline, you make goals and to-do lists that lay out your plans for hours and days to come.

It’s easy, really, to be absorbed by what has come beforehand, and what may happen tomorrow. On this day, which is cool and grey and just a little  bit drizzly, after the brilliance of a late spring weekend, you almost want to snuggle up somewhere cozy, and think about a warmer, sunnier, easier time in your life. It would be simple to give away this moment, and trade it for thoughts about something past or future.

Yet today I challenge myself to remain in the moment. To ride it out, rather than wandering away.

This time we’re given — now, here — is just as sacred as what has passed and what may come. And each now touches the next now, connecting all of them infinitely.

An illustration by M.C. Escher

The contrast between now and infinity, as a mathematical idea, has been played with in the concept of such constructions as the mobius strip or the Klein bottle. Or in the illustrations of M.C. Escher. We love to stare at and play with the impossibility of being able to see a representation of eternity, because in other ways, these ideas are completely possible. We can describe them in equations, explain them through physics, or believe in them in our spiritual practices.

Argh, sometimes, it’s all too much to think about. Let’s just say that, for once, I am making an effort, a mental push-up and a small contract with myself, to be here: present in this moment.

In some faith traditions and philosophies, now is all there is. It’s an ancient practice. A long-held idea. Consider the teachings of Buddha, for instance. Or read the words of the 19th century poetess Emily Dickinson, who captured something of what I have posed as a reflection (and an exercise in discipline) for myself today.

Forever – is composed of Nows –
by Emily Dickinson

Forever – is composed of Nows –
‘Tis not a different time –
Except for Infiniteness –
And Latitude of Home –

From this – experienced Here –
Remove the Dates – to These –
Let Months dissolve in further Months –
And Years – exhale in Years –

Without Debate – or Pause –
Or Celebrated Days –
No different Our Years would be
From Anno Dominies –

What I especially love about this poem is that thousands, maybe millions, of other people have read and considered it. Each of us in our own moments. Our nows are strung and twined together across a loom of Emily’s imagined infinity, if you believe that now dissolves into an endless skein of time.

The readers’ shared experience, like the feel of gravity that binds us to earth, or the light of the sun that shines down on us and the moon that tugs at us, joins us in another common experience. Our individual minds make a ribbon of human curiosity, pain and love that braids all our lives together.  Each of us privately, and all of us together, have waded through her poem, puzzling over its moving and challenging phrases,  trying to stand inside the “latitude of home” or to breathe with an “exhale in years.”

In a season when I’m looking at gravestone markers and diplomas, at endings and beginnings, I especially appreciate her invitation to “From this – experienced Here – Remove the Dates – to These –”

She doesn’t punctuate the poem, did you notice? There aren’t any periods or questions marks. Just dashes that mark time like the tick-tock of a clock, allowing lines and moments to be daisy-chained together, rather than snipped off completely. Without punctuation, in a poem written as small phrases, there’s no clear sense of a start or finish to the sentence and thought. Not precisely. Just a cycle that repeats and repeats and repeats.

She says that forever is not a different time. I would add, it’s not a different time, except when it is. There’s paradox for you.